to the deficiency
of personal from hospitals, quite often the parent becomes also the
of her/his child, besides her/his role as moral upholder. A child
with cytostatics, Prednison and similar drugs, with side effects known
well by many, is very weak and his appetite is almost non-existent. As a
result, the child
needs constant care.
The parent is the one who feeds and keeps clean
child while in hospital. Sometimes the parent is the one who surveys
administration of the drugs in time.
And when they share the room with
an orphan child (like Ionut, Alina or Stefana), they become the
foster parents of this one. Also the parents are the ones who survey
hygiene of their child during hospitalization, by asking to the
to clean the room and to change the laundry.
spite of all these, nowhere in Romania you will find a place in
reserved for the relaxation of the parents. This relaxation meaning 20
minutes of resting in an armchair while your child sleeps. It's no way
for them to have a shower after a night spent near the bed of her/his
for this purpose, we succeeded in creating a resting house for them,
they can come and stay for free during the treatment of their child.
house was opened in October 1998, in the presence of the Romanian
and of other visitors from abroad.
Since the beginning Parents House
registered over 1200 entries, parents and children.
This house has three dorms prepared
with all the necessary things and a playroom for children. These are
of a five-room flat, the fifth room being the office of P.A.V.E.L.
and furnished by the Dutch foundation Kinderen in Nood, from
Bussum and offered with rent free to Association P.A.V.E.L., to be used
for the program Parents' House.
We hope that this
flat will be donated in one day to our organization -
to guarantee for
long term the existence of the
Parents' House or even, the organization will get - for the same
purpose - a larger space, with a small garden.
Frank, Evelina, Fiona and
Andreea Marin in visit at P.A.V.E.L. house
for the Parents' House project in 2006 and
P.A.V.E.L. Resources and Services Center
The Resources and Services Center is the result of the
partnership between the Association P.A.V.E.L. and the Oncologic
Institute "Prof. Dr. Alex Trestioreanu" Bucharest, a partnership having
as a goal the diversification of the services provided to the children
with cancer and to their families and the strenghtening of the
public/private institutional framework for action in the field of
This project is being run within the framework of
the Project "Building the Future for
the Children of
Romania", financed by The International Union Against Cancer
www.uicc.org) and by the Pharmaceutical
Company sanofi aventis, France.
The opening of the P.A.V.E.L. Center of Resources
and Services for the
ill children and their families (on the 5th of June 2007) was a
success, being present: parents, medical staff, the representative of sanofi aventis Romania company (Dr. Carmen Mihai),
members of P.A.V.E.L., representatives of mass media, other people.
After that date, there were also other interviews given to TV
chanels and magazines about this Center.
This could happen thanks to the extraordinary
financial support - from Sanofi Aventis
company and UICC (which
helped the Center to be refurbished and equiped, as well as covered the
salaries of the team), ,
(some items for refurbishing and some pieces of equipment), from ROMTELECOM (2
free telephone lines and internet), from Orange (for
- donated books, DVDs, toys and other
materials from organizations
and private people ;
training (given by the team: Susan George, Jane Lewis, Lesley
Nicol, Cassie and Megan) and the printed materials - from CLIC Sargent
foundation (big thanks to Geoff Thaxter), as well as the support
recieved from Hospice
Casa Sperantei, from Brasov; thanks to the printed materials
recieved from ECPC
- the encouragement - from a lot of people from Romania and abroad
- also thanks to the very kind
and constant support of some volunteers
from Romania: Mona Gotteszman,
Ema-Elza Seclaman, Anca Poroineanu, Dana Hadareanu, Adriana Dumitrescu,
Renela Diaconescu, Camelia Demeter, Carmen Sava, Frank Cridland,
Paraschiva Spanu, Maria Sornea,...
- and thanks to the support of the Oncological Institute
"Prof. Dr. Alexandru Trestioreanu" from Bucharest (represented
Dr. Nicoleta Manu, Manager and Mrs. Dr. Monica Dragomir, the Chief of
the Pediatrics Ward),
- as well as thanks to the support given by Mrs.
Dr. Carmen Mihai (the representative of Sanofi Aventis Romania).
thanks to Mrs. Laura Ivancioiu Ionita (from "Deci se poate")
A good description in this moment of our work
is through some images -
taken the long of this perriod, from March (when started the
preparation of the place, where there is the Center) till present.
Already the team is working there with
patients and families and
everybody is welcoming this project.
The event generated 20 presentations in mass
1 presentation at TV (Prima TV)
6 presentations in Newspapers (Atac,
Adevarul, Evenimentul Zilei (2 articles), Jurnalul National, Romania
2 presentations at Radio (Radio Romania Actualitati, Radio
7 presentations on-line (www.atac.ro, www.adevarul.ro, www.evz.ro
(2 stiri), www.romanialibera.ro, www.stiri24.ro, www.topsanatate.ro)
4 at Press agencies (NewsIn (2 stiri), Rompres, Mediafax)
Possibilly, it will be other 15 future presentations of this
event, 3 of them at TV.
Cristina showing the way to Center
The official opening of the Center
Cristina, Iulia, Simona and Olga
Parents, children and staff at
The address of P.A.V.E.L. Resources and
Services Center is:
Institute "Prof. Dr. Alex. Trestioreanu" (ground
floor, room 116, next to the Chapel), Şoseaua
Fundeni Nr. 252 Sector 2, Bucureşti, cod 022338
Phone / fax: +40 (21) 311 27 00
+40 (21) 318 32 69, interior: 1551
In September, it will start to
function a Helpline
telephone, thanks to the generous sponsorship of ROMTELECOM company, who offered
for free use also another telephone line and internet.
The presentation of the project:
"Building the Future for the Children of Romania" (in short)
/ Country situation:
is at the present time an important public health issue, being the
second cause of death in Romania.
than 40,000 people die yearly of cancer, while more than 45,000 new
cases are diagnosed.
lack of information for the public, seconded by a limited commitment of
the authorities in the field lead to a late diagnose of the disease
and, subsequently, the treatment becomes extremely costly, aggressive,
involving more sufferance both for the patient and his or her family.
in almost 75% of the cases, healing is not possible any more. For this
reason, the public perception is wrong, making out of cancer a
merciless diagnosis, the equivalent of a death sentence.
is also an important cause of death for children or teenagers.
types of cancer developed in a child are different than the one in an
adult, as location, frequency, histological types and treatment,
needing, therefore, a different approach. But, as in the adults’ case,
early diagnose represents the essential premises for healing, being a
clinically proved fact that the early diagnosed tumors in children can
be cured in 80-90% of the cases. Treatment is though, a long-term one,
in many cases the patient needing to be admitted in the hospital
together with a family member.
by a terrible diagnosis, children and parents find themselves together
in a critical situation they don’t know how to manage. Children are
taken apart from their group of friends; in many cases, they can’t go
to kindergarten or school or, if they go, they are treated somehow
different. Above all these, they also have to deal with the pain or the
inconveniences caused by the treatment and the fact that they spent so
long in the hospital, confined to their beds, generates agitation,
nervousness. Changes in their physical appearance also generate
frustration. Parents don’t know how to cope with this situation, either
emotionally or financially. They live through this traumatizing
experience with no information concerning the disease, the proper
treatment, the living conditions required in these cases or the legal
rights of the children in this situation.
the European Union, services for patients, especially those with an
incurable or a long-term cure disease, take into account all the
aspects dealing with the life quality or the social aspects involved.
In Romania, there is no systemic, coherent thinking on approaching
patients’ complex needs, medical policy restraining itself to providing
medical assistance and treatment. Also, there is not inter-institutions
cooperation on the problems of this type of patients.
the nature of its field, PAVEL Association is the only organization
that got itself involved in supporting families of children with
cancer, who are receiving medical treatment in Bucharest (the onco and
hematology pediatrics clinics from here are treating children and
teenagers from a large area of Romania) and among the few NGOs working
for cancer patients, in the country.
PAVEL Association is for a long time concerned with all these issues.
PAVEL, it is known that only good information makes the difference
between a healing treatment and a treatment that only postpones the
unavoidable. PAVEL knows about the need for support for children with
cancer and for their families and knows also that, in order to make a
real difference, a change has to be done in the national medical policy.
all these aspects, PAVEL Association has as a goal to involve in
delivering information to the public and in making the public aware of
the signs and symptoms that may occur in an early stage of the disease
and which, if considered, may lead to an early diagnose of cancer.
PAVEL Association wants also to deliver to those interested information
on the possible types of treatment, on the services provided in Romania
and also on the rights of the children with cancer.
the frame of this project, PAVEL wants also to provide counseling and
support services for both children with cancer and their families. All
these could be coordinated from a resources and services center opened
in the Oncology Institute, which is in the same yard with the Clinical
Hospital Fundeni, from Bucharest.
location was chosen considering that, among the hospitals with
pediatric oncology wards from Bucharest, the Clinical Hospital Fundeni
provides medical care for an important number of children and teenagers
from all over the country. Weekly, about 120 children with ages from 1
to 19 years are treated in the pediatric hematology ward of the
hospital (the Paediatrics Clinics 1 and 2), and in the Oncology
Institute, at the Pediatrics ward about 60 children are treated weekly.
The third hospital, which is in another location of Bucharest and where
there is also an oncology ward, is : Emergency Clinical Hospital for
Children "Maria Sklodowska Curie" (known also as Budimex), which
provides treatment for about 50 children weekly.
Association thinks that the approach in such a complex and sensitive
field as the issue of children with cancer needs cooperation and
commitment from the part of as many actors that may have an important
part in shaping and enforcing proper, even practices, according to the
European requirements and standards. Therefore, the goal of PAVEL
Association, through this project, is to facilitate the cooperation
between authorities and NGOs, to promote good practices, allowing
emerging initiatives that would reinforce the institutional framework
in providing care for children with cancer at national level.
think that, through the enclosed activities, the project is more than
helpful for children with cancer and their families, properly meeting
their needs, reinforces the institutional cooperation, promotes good
practices, supports the experience exchange, capitalizes and spreads
the existing experience. By spreading the specific information, it
plays a part also in the early diagnose of cancer in children,
significantly increasing the healing chances, and it also plays a part
in the mentality change both of the patients and of their communities.
goal of the project is the improvement of the grade of information and
awareness of the parents, professionals, organizations and public, on
the issue of children cancer.
Diversification of the resources for parents, professionals,
organizations and public, on the issue of children cancer.
Increase of the information and awareness level of parents,
professionals and public in Romania on the prevention, treatment and
services available in the field of children cancer.
Reinforcement of the public-private institutional framework and
sensitizing of the professionals, authorities and public, in order to
observe and promote the rights of the child with cancer.
of the project
project is expected to stimulate a change in the manner in which the
Romanian parents, proffesionals and authorities respond to cancetr
issues and to provide direct services through the Resources and
Services Centre and practical guidance in designing local action plans
to address this problem through partnership in Romania. It will also
raise awareness of the professionals and policy makers on the
importance of acting in timely manner ways that complement and
coordinate interventions addressing health problems in Romania. In
addition, it will increase the expertise and visibility and will prove
the effectiveness of coherent actions of the P.A.V.E.L. Association and
its partner through Centre activities.
general strategy of the project is based on the creation and
consolidation of a Resource and Services Center, a partnership between
a NGO, association of parents of children affected by cancer (PAVEL
Association) and a public institution, a hospital (Oncologic Institute)
and a good communication and dissemination of information on cancer
prevention and treatment. This Center will represent a milestone both
for the parents of children with cancer who benefit from the services
provided by the hospital, coming from all over the country, for the
professionals in the field and for the public. The Center will be run
by a multi-disciplinary team, which will set an example of coordination
and cooperation in Romania on the issue of children with cancer.
advocay actions aiming the local and central authorities are,
therefore, an essential part of this project. Our goal is that parents
and children, beneficiaries of PAVEL Association and of the hospitals
mentioned above would have an essential part in the activities of this
Attract national and international support in the form of donations,
grants and exchange of experience for the development of the Resource
Centers for Cancer in Romania in the next three years;
Promote the work and results of the Resource Center at the local and
national level, especially in relationship with hospitals,
Universities, national companies and government and attract their
support for further developing this Resource Center and others in
Continue to attract professionals and parents in order to generate and
mobilize local resources on a continuous and growing basis to address
community level needs.
partner of the project is : Oncologic
Institute, from Bucharest. It is possible, as future partners of this
project to be also : CLINICAL INSTITUTE FUNDENI, Paediatrics, EMERGENCY
CLINICAL HOSPITAL FOR CHILDREN "Maria Sklodowska Curie"
activities within the project
are thought in order to meet actual needs, identified at the level of
the target population and at community level and to secure reaching the
goals with efficient, long-term results.
Establishing the Resources and Services Center in the field of children
Establishing, updating and developing a database.
database will be constantly updated and developed and the information
will be accessible both directly in the Resources in Services Center
and through the site that will be developed within the framework of
Organizing a Library/Video Library
the Resources and Services Center, a library/vide library will be
organized, containing materials useful both to children with cancer,
their families, staff in the field, and also to those interested in
developing formation activities in the field, needing documentation.
Creating the Website
website of PAVEL Association will be improved and developed by adding a
website component of the Resources and Services Center, emphasizing two
elements: database and discussion forum.
Establishing and functioning of a Cancer Help Line
Providing direct support services to children and parents
the frame of the project, PAVEL Association, together with the
multi-disciplinary team of the Resources and Services Center in the
field of children cancer, will provide the following types of services:
Social assistance and counseling;
Psychological assistance and counseling;
- Legal counseling;
Support groups for parents and “school for parents” type of services;
“Respiro” type services (free accomodation, recreative activities,..);
Facilitating contacts with doctors and clinics from abroad.
Making off and disseminating information materials
topics of these materials will approach: 1) prevention of children
cancer (favoring factors, prevention means, etc.), 2) early diagnose,
3) treatment available in the world and in Romania, 4) services
provided in Romania and any other needed materials.
Awareness raising activities
awareness raising policies, policy makers, public authorities, media
and other stakeholders will be exposed and will learn about prevention
of children cancer and about the issue of children with cancer, being
in direct communication with PAVEL Association and its members, parents
and collaborators. This way, we think that there will be the
opportunities and premises for decision making considering the existing
needs and priorities.
Organizing a seminar with representatives of Romanian cancer
organizations, in order to mobilize local resources and to elaborate an
Organizing a national conference (February 15)
a national conference will mark the culmination of the project, because
create the opportunity to present the results of the project, the
prevention and improvement of the situation of children with cancer in
Romania and it will create a formal frame for a dialogue between all
the actors involved, both in the public and private sector.
the parents of the children suffering of cancer
try to bring the doctors and the parents to understand the child needs.
Also, to educate and advise the parents of their rights. We try to give
to parents moral, material and informative support;
Many parents don't understand what is happening to their
child and they don't know how to fight.
hospitals have not the necessary staff to educate the parents and their
children how to deal with the new and painful situation.
why we published
four medical booklets for parents, 1000 pieces each. The permission for
translating and publishing these booklets (per total 55 pieces) was
for free to Mrs. Olga Cridland, the president of the association, by
foundation from United Kingdom and the necessary amount for publishing
by association AIDRom from Romania.
The German group Evangelisch -
Kirchengemeinde from Harsefeld published 2000 books for
booklets are available for parents and children, for free.
medicines for the parents
to help the families of children ill of cancer by buying those
needed in the treatment of the these children and which are missing
hospitals, and due to their high price they can't be bought directly by
parents. For buying these medicines, during the years, we received the
help of Ordre de Malte and PAVEL France, of Kinderen in Nood from the
Health Aid UK, Een Haerz fir Kriibskrank Kanner from Luxembourg etc.
We have created also a site: www.asociatiapavel.home.ro
the same role of informing and
communication. We try
to help any parent or young person who asks our advice, moral support
the food for the parents from the hospital
the past years,
we succeeded in providing the food for the parents and children found
P.A.V.E.L. House and in hospitals.
two-three weeks, from September 2000 to 2003, a group of volunteers
distributes meat products
the parents from hospitals, using these occasions for talking with them
and finding out their problems. The food is sponsored by
S.R.L., from Bucharest.
for the families with children ill of cancer
Through the agency
of P.A.V.E.L. several families and other people in need (poor, with
handicap, affected by floods,..) received help consisting in food,
shoes, toys, wheel chairs, etc.
the endowment of onco-paediatrics clinics
of foundation Kinderen in Nood, there were organised seven transports
and medical equipment
for the hospitals Fundeni (153 813 NLG)
and 'Maria Sklodowska Curie' (19 710 NLG) , but also with goods for
Romanian associations and foundations. The German organisation,
Kirchengemeinde has donated the necessary amount for buying
for hospital Fundeni.
In 2003, 2004 and 2005, at our advice, the
Kinderen in Nood has offered a very generous support, material and
financial, for the endowment of the "Intensive Therapy" section, from
the hospital Victor Gomoiu, from Bucharest.
the parents by contacting different hospitals and clinics
Our association tries to
contacting the hospitals and different clinics from abroad in order to
them provide to their children the best medical help.
got treatment abroad free
of charge for 6 children, ill of
cancer, thanks to the local organizations, church and authorities.
we helped many other ill children and young people to get in touch with
different clinics or doctors and we learnt their families what and how
to do to
get there; we supported them in their fight to get the money for the
treatment or operation.
also try to link our doctors with doctors from other
countries, to share
their knowledge and experience.
Loredana, before to leave for treatment
Participation at campaigns
and actions in the favor of cancer patients and hospitals
- raising is done for the developing of the Romanian medical
system, in order to realize the bone marrow transplant, for the cancer
Association P.A.V.E.L. has
participated in a fund-raising event in co-operation with the
"Surprize, Surprize" show company and with the extraordinary
contribution of Mrs. Andreea Marin, which took place on the Romanian
television channel, TVR1, on the 11th of September 2004.
The following up results on April 2005 were: all the
money (6,295, 402, 913 lei meaning almost 179, 869 Euro, including the
interest, too) collected in the fund - raising (the Campaign
"Pretuieste viata") - done for the developing of the Romanian medical
system in order to realise the bone marrow transplant for the cancer
patients - were transfered on the 06.04.2005, from the special
(campaign) accounts of the Association P.A.V.E.L. (opened for this
occasion) into the accounts of the three
bone marrow transplant units from Romania, from Bucharest, Timisoara
and Targu Mures (Clinica III -
Compartimentul de Transplant Medular al Spitalului Clinic de Urgenta
pentru Copii „Louis Turcanu”, Timisoara, Departamentul de Hemato-Oncologie si
Transplant Medular al Institutului Clinic Fundeni, Bucuresti si Clinica de Hematologie si Transplant
Medular al Spitalului Clinic Judetean de Urgenta, Targu Mures). Each unit received
the same amount of money.
In November 2005, we have participated in Bucharest, at
the invitation of other cancer patients' organizations from Romania,
members of the Federation of the Cancer Patients' Organisations - at
the “Caravana Bolnavului de Cancer” (Cancer Patient Caravan), which had
as purpose to make aware the public over the difficulties in the
treatment of the cancer patients, in Romania.
- In 2005, we have
offered breast prosthesis (got from a generous donation from SKIN,
Holland) to over 350 ladies,
30 of these were
donated to the organization ABC from Brasov, for the cancer patients.
Also, in the last years, there were donated wiggs and wheel chairs to children and adults, thanks to
the generous contribution of the foundation SKIN, of an Irish
foundation and recently, thanks to an organization from USA (Broken
with 2003, the day of 15th February is considered the International
Childhood Cancer Day .
Events concerning this
occasion may be run for up to a month around this date.
purpose of the
International Childhood Cancer Day is to:
help educate the public about childhood cancer;
- support local fund-raising by members of ICCCPO (the International
Confederation of Childhood Cancer Parent Organizations);
- provide international sponsorship of ICCCPO.
time, we celebrated the Childhood Cancer International Day, on 15
January 2002, at the National Operetta Theater from Bucharest, with a
concert having as extraordinary guest, Baroness Emma Nicholson.
Since then, each year, we organize celebration in hospitals (also at
P.A.V.E.L. Association House) inviting known artists or sportives and
offering presents to children; also drawing competitions with prizes,
partnership with the Charitable Society "Blythswood" Romania,
Association P.A.V.E.L. organized a charitable concert named "Vreau sa
Traiesc" for the ill children from hospital M.S.Curie, from Bucharest. At
this concert have performed some known musical Romanian bands and
singers: PROCONSUL, MOROMETZII and STIGMA who presented a very
appreciated performance by public !
from the charitable concert for
the children with leukemia, from Budimex hospital
Naafs-Wilstra, Olga, Tuta and Mariana, at the
Conference of ICCCPO, from Amsterdam
Since 1997, one
or more representatives of the Association P.A.V.E.L. and
survivors have participated each year at the International Conference
(The International Confederation of
Childhood Cancer Parent
where we made a strong lobby for the Romanian children with cancer, we
contacts with other organizations, parents, doctors, companies. One
results was the financial aid for buying needed medicines for the ill
received in 2001 from the parents organization, from
Emotional support, educational
and entertainment activites
The long of the years we have
developed different activites of entertainment
(trips, drawings exhibitons, Easter, Christmas and other
celebrations activities developed in the
oncological / hematological wards), playtherapy and educational
activities in order to help children and families cope with
the challenges they face daily.
We noticed the following benefits:
Reduced pain and distress
A reduction in the fear and isolation of a prolonged
A greater willingness to return for treatment
An increased sense of peer support
Increased knowledge and sense of responsibility for
Much needed distraction from the challenges that accompany
Increased ability to cope with their disease
with ill children
best as possible to give to the children a better quality of life to
make them strong and fight themselves for the future.
activities and outings, offered regularly to give families a chance to
have fun together away from the hospital so they can relax, regroup and
return home with a renewed sense of strength and hope. The events
forge connections between families struggling with similar issues to
Last three years, we took 25 children, together with
parents in trips into the mountains, for three days - and we noticed
that in a such a short time, the children became closer together and
stronger in their attitude to their illness.
In other words, it gave them a will to fight.
We hope to repeat these again the next years and we hope
to be able to organise in a nice and clean area, a camp, specially for
them and to get for this a small house with garden and a minibus.
In October 2001, our
association organised with the help of IWA (Romania) a three-days tour
trip in Baia de Fier - Polovragi area. At this trip 11
and they visited two caves, several monasteries and a potery centre
In 2002, we have organised another four - days tour
for the ill children and their parents, on the route: Năvodari, Cetatea
Histria – Vulcanii Noroioşi - Bisoca – Poiana Braşov - Bran.
In the last three years, on the 17th of
December, at the invitation of the ABC organization, from Brasov we have participated together
with children, cancer survivors and their parents at a Concert for
Cancer Survivors Day, at Opera Theater.
Day 2005, celebrated at Brasov
with drawings of the ill
June 2001, P.A.V.E.L.
organised two drawing exhibitions which took place at Connex (on 4th
and at British Embassy from Bucharest.
hospitals (permanent program)
The playrooms are
designed to ease the loneliness, fear and boredom that accompany long
hospital stays. They provide children with an inviting place to play,
relax and connect. Additionally, we brought fun-filled special
events involving musicians, clowns and other entertainers to pediatric
hospital patients - even those who are bedridden - to provide a morale
boost and important social interaction.
Also, we tried to offer emotional support to children and
parents and to help the children with educational activities, for
easier reintegration in their school program.
Thanks to the
financial and logistic
support given by
the company of
nurseries, Happy Times (HTC Healthcare), from London, we have started
in 2002 to set up (new refurbished) playrooms in two hospitals (M. S.
Curie and Oncology Institute) from Bucharest.
With the help of a British play – therapist, Miss
Fiona Alexander, sent by the company Happy Times, there were
taught some local carers and parents the importance of play in
rehabilitation.The company Happy Times employed a Romanian
playtherapist, Maria Ionescu, for one year, 2003, for the playroom from
the hospital M.
In 2004 and 2005, the activity at this playroom was
the help of few voluntters: Crina Nedelcu (paid in kind with free
accomodation) and then in 2006, Anca Marin
(for 12 hours / week) and Crina Nedelcu (for 3 hours / week).
2006, thanks to the kind support received
from Joshua Foundation (UK), we could pay (part- time) two
playtherapists (for the same playroom, from M.S. Curie hospital): Anca
Marin and Mihai Scarlat.
In 2007, the activity was developed with the help of
Marin (first 3 months), Mihai Scarlat and of the volunteer Maria
Toscano (Portugal); from June, we got the help of Camelia Demeter, who
is now playtherapist at Oncologic Institute and recently, the team
enlarged with another playtherapist, for the hospital M.S.Curie
(Budimex), Raluca Elena Tanase.
Also, it have joined four new volunteers: Luciana
Ionica (survivor), Ana - Maria Hartauca (survivor), Camelia Gavril and
Oana, for playtherapy at Budimex hospital! Camelia
Demeter is helped also by four students from Psychology Faculty and by
Florentina Dan, as volunteers.
thanks to the Foundation Kinderen in Nood, we can
- time salary
for a playtherapist for this playroom and also, thanks to a private
person, we can pay also a part
- time salary
for a playtherapist for Oncological Institute.
In 2003, at the hospital V. Gomoiu
Buharest, it was completly refurbished another playroom, with the help
of our volunteer, Mr. Frank Cridland and material support from
foundation Kinderen in Nood.
For two months, Angharad Davies from Swansea, South
Wales, student at Psychology Faculty in Cardiff worked as volunteer at
the playroom from this hospital (she helped us furher on through
contacts in UK, for getting funds for a playtherapist' salary, for
In 2004, this room was
transformed by the managers
of the hospital, in a medical cabinet, loosing unfortunately this
useful place for children.
In 2007, thanks to the generous contribution of the
company sanofi aventis, at the
5th level of the Oncological Institute "Prof. Dr. Alex. Trestioreanu",
near the Pediatrics ward, we created: a new small Playroom and in the
ward, two corners, one for the relaxation of the parents and other, for
the play for those small children, who can' t leave the ward.
generous help from Foundation
Kinderen in Nood, IWA, sanofi aventis, Mobexpert and a private person
the playrooms from the hospital "M.S.Curie" (Budimex) and the
Oncological Institute, the relaxing corners for parents - at the
oncological wards (from both hospitals), the P.A.V.E.L. Center, the
P.A.V.E.L. House and the launch room for children from pediatrics (from
Oncological Institute). Also we got the necessary educational materials
for all these places.
We got from private persons donations in toys, DVD,
video -tapes, books - and we thank to all!
We thank to all mass media representatives for
their support, starting with June 2007!
Also, to all the volunteers who helped us to keep
the activity going at the playrooms.
playroom from 'Dr. V Gomoiu' hospital and Angharad as
playtherapist, in 2003
from the playroom of oncology ward, 'M S Curie" (Budimex) hospital,
festivities for children in hospitals
the winter of
1995, we have organised each year Christmas and Easter celebrations
presents for the children found in the onco-paediatry clinics of
Fundeni, 'Maria Sklodowska Curie', 'Victor Gomoiu', 'Grigore
Alexandrescu' and Oncologic
'Al. Trestioreanu' from Bucharest. We also used the occassion of International
Childhood Cancer Day - to give gifts to the
of Christmas 2005, in
hospitals (Fundeni, Institute Oncological and Budimex)
and a Happy New Year!
On the 23nd
of December 2004, Olga Cridland, Tuta Visescu,
Mariana Zamfirescu, Cosmin Halmagi and Frank Cridland
from the Association P.A.V.E.L. organized the
Christmas celebration at the oncological and haematological
paediatrics departments from the hospitals: Fundeni, Oncological
Institute and M.S.Curie.
Next days, it will be organized a similar event for
the children of the members
of the Association
Father Christmas was Cosmin Halmagi.
celebration was organized together with Andreea Marin
from "Surprize, surprize" TVR program and her
P.A.V.E.L. Camp for children ill of cancer
(SMILES on WHEELES)
We wish to buy a small house with
garden, for a camp (or better said, a respite home), in a countryside
area, but close by a medical
center, where the ill children together with their family can spend a
nice holiday. The costs would be much
smaller comparing with other camps for the ill children, from abroad.
For house and garden, the cost could be between 20,000
and 40,000 Euro (in 2006)
and the costs for running the camp, could be around of 5,000 Euro /year (the rest, being
covered by volunteers' work).
Also, we wish to buy a mini-bus for
children, for trips, for weekend events and for transporting (as
an ambulance) very ill children or who died (of poor families) - at
home, in province.
Many similary camps (mostly, much larger and with
very high costs) were realized with the support of known campanies
(also pharmaceutical campanies) in: USA (most known: Paul Newman’s
renowned The Hole in The Wall Gang
Camp), Ireland (most known: Barretstown
Gang Camp) , France (L'ENVOL,
pour les enfants européens), in UK, USA, Australia and Canada (Camp Quality), in USA and Canada (KOA Care), in USA (The Boggy Creek Gang Camp), Germany,
As founder Paul
Newman says, "It's
not that the children say, 'Thank you for a wonderful time...' it's
that they say, 'Thank you for changing my life'."
Founded by Paul Newman, Barretstown camp opened in 1994.
The core summer programme is a unique 10-day therapeutic recreation
Supervision is highly individualised with a minimum two-to-one ratio of
children to carefully trained supervisors.
Children come to Barretstown from Ireland, Britain and throughout
Europe, diagnosed with a wide range of illnesses - primarily cancer and
serious blood diseases.
Barretstown's medical centre is staffed 24 hours a day by paediatric
specialists and nurses.
Barretstown will have served over 11,000
individuals by the end of 2005 (for the past 10 years), having grown from serving
124 children in 1994.
Barretstown also provides spring and autumn programmes serving children
Barretstown must raise nearly $5.3
million per year to provide this remarkable programme free of
charge, including round trip transportation and impeccable medical
Around 700 children and their families who have benefited from
Barretstown’s programmes over the past 10 years came back for a
spectacular 10th birthday party with founder Paul Newman.
Over 11,000 children with cancer and other serious illnesses have taken
part in Barretstown’s life-changing programmes since the charity was
set up in 1994. Their stay and
their airfares have all been
provided free. Paul Newman was
in party mode as he arrived to kick-start a day of ‘serious fun’ for
past campers, their families, staff, volunteers and friends of the
Party-goers were entertained by Fossets
Circus, as well as music by Westlife
tribute band Westlike, arts and crafts, face painting, games and
bouncy castles. Families were invited to take a tour around
Barretstown’s facilities, and for past campers it was a trip down
Declan Noone, 21, from Creggs, Co Galway, came to Barretstown several
times as a teenager and has now come back as a volunteer or ‘cara’ to
help the children at camp. He joined Paul Newman on stage and presented
him with a sculpted bronze lamp. The ‘Fairytree’ lamp made by Genesis
of Mullingar, Co Westmeath, depicts a sad child at the base, a second
child beginning to find their feet and a third reaching up towards the
light—Declan said this shows the difference the Barretstown programme
makes to a child.
He told the party audience: “I was here years
ago as a camper and today, for the first time in about nine years, I
saw two of my very first caras. I am still giddy and nervous about
talking to them as they meant so much. The entire place has meant so
much to me growing up and was so important because it has made me the
person I am happy to be. Coming back has been incredibly special too. I
want to say thank you to Paul from every single one of the families and
all of the 10,000 children whom you have made happy over the last 10
To cheers from the crowd, Paul Newman accepted the sculpture and said: “One of the most
incredible parts of all this is how much nourishment there is—how much
nourishment we try to provide for all of you. But you give just as much
to all of us by what you do.”
Realising these projects was possible thanks to the donations and
received from private persons, organisations and companies from France,
the Netherlands, Germany, UK, Luxembourg, Canada, Romania etc.
We receive no state funding. We depend
solely on the support of
individuals and local or international business and organizations to
help in our mission.
of all the
parents and ill children that received their help, we
would like to thank in this way to our
donors and sponsors:
Kinderen in Nood
Vereniging 'Ouders, Kinderen en Kanker'
Een Haerz fir Kriibskrank Kanner
PAVEL France (Fr. Jean
Dominique, Olivier de Kervenoael), soeur Alix
Evangelisch - lutherische Kirchengemeinde
and Eric Carter
Romanian club of
the Marianopolis College
CLIC Sargent Foundation (training and written materials)
Happy Times (HTC
Healthcare) - Adam Shaw and Fiona Alexander
Davies and Frank Cridland, from Swansea
Luiza Dihoru, volunteer from Bristol
Children' Cancer Study Group)
Michelle Marinth & Valeria Ivan
French Orchestra, Boston
EUROCHILD AISBL (scholarship)
American Tobacco Romania
- Cola SA
Hoffmann – La Roche Pharma (ROCHE Pharmaceuticals) Romania
"Casa Sperantei" (training and
Obada si OBADA-TRANS SRL, Otesani, judetul Valcea
Fundatia pentru Copii si Tineret
ECOKIND (Gradinita MOREL (www.morel.ro)
Karpia Grup Com
Hurezi, Sfintii Imparati Constantin si Elena
Mediplus Exim SA
Primaria Generala a Municipiului Bucuresti (Dl. dr. Sorin Oprescu, Primar
Rafaello - Antefrig
Sanofi Aventis Romania
Mega Discount - REWE Romania SRL
"Deci se poate")
for press monitoring
and to all the other donors
and private persons who help us.