NEWS




                 P.A.V.E.L. HELPLINE  for young cancer patients: 0800 800 421

Our new website: www.asociatiapavel.ro

International Childhood Cancer Day
15 February 2008

    Beginning with 2003, the day of 15th February is considered the International Childhood Cancer      Day.
   Events concerning this occasion may be run for up to a month around this date.
   The purpose of the International Childhood Cancer Day is to:

    * help educate the public about childhood cancer;
    * support local fund-raising by members of ICCCPO (the International Confederation of Childhood Cancer Parent Organizations);
    * provide international sponsorship of ICCCPO.

Date:
- International Childhood Cancer Day is held on the 15th February each year.
- Fundraising and media events held throughout February.

The purpose of the International Childhood Cancer Day (ICCD) is to:
- Educate the general public about childhood cancer
- To raise money through fundraising events
- To promote the work of local parent organisations

At the end of the year 2005, in Romania there were registered 354,572 cancer patients, 4,467 being children with age bewteen 0 and 14 years old. There are 55,000 new cancer patients diagnosted each year (incidence rate is 252 people with cancer at 100,000 people), from whom 165 are under 14 years old.
In Romania, the average rate of recovery of these children is about 30 to 60%, in function of the specific of disease.

P.A.V.E.L. Association is the single parents' organization from Romania, whose children have cancer and one of few cancer patients' organization country, who work for cancer patients.


Childhood cancer facts

Childhood cancer is rare, but highly treatable
Each year, more than 160,000 children are diagnosed with cancer and approximately 90,000 die of cancer.

Childhood cancer is relatively rare
In the 1990s, age-standardised incidence rates were 140 per million for European children (0–14 years); ASR rates for the 52 countries in the 1998 IARC study on the international incidence of childhood cancer have a rough average of 120 per million. 

Childhood cancer responds well to prompt and effective treatment

In the USA, childhood cancer was almost uniformly fatal before the mid-1960s, but survival rates improved to 55% in the 1970s and better than 75% in the 1990s.
In Europe, 5-year survival rates improved from 44% for children diagnosed in the 1970s to 64% for children diagnosed in the 1980s and 74% for children diagnosed in the 1990s.
Improved survival rates are largely due to better treatment and improved quality of care. Chemotherapy was introduced for the treatment of childhood leukaemia in the 1940s and has been incorporated into treatment regimes that previously relied on surgery or radiotherapy for other common childhood cancers. In the USA, seven out of ten children now receive their care in special paediatric cancer treatment centres.
But not in the developing world…

80% of children with cancer live in developing countries. They are often diagnosed too late or not diagnosed at all.
Without access to life-saving treatment, more than one in two of these children diagnosed with cancer will die.
Treating childhood cancer doesn't have to be expensive. By developing treatment regimes that take account of a country's medical facilities and providing proper training and advice to local doctors, we can make great progress on relatively limited funds.
The international community needs to recognise the plight of children with cancer as a priority.
HIV/AIDS remains a critical priority for the health of children in sub-Saharan Africa, but cancer is emerging as a major cause of childhood death in Asia, Central and South America, northwest Africa and the Middle East, where fewer children are now dying from preventable infectious diseases.
A coordinated strategy by the global cancer control community – one that combines innovative science and sound public health policies – can save a large proportion of the 90,000 young lives lost every year.

Sources
"Annual Report to the Nation on the Status of Cancer, 1975-2001, with a Special Feature Regarding Survival", Cancer, vol 101, no 1, July 1, 2004.
Global Action Against Cancer (Geneva: UICC/WHO, updated edition 2005).
Ribeiro R.C. & Pui C-H. (2005), "Saving the Children - Improving Childhood Cancer Treatment in Developing Countries", New England Journal of Medicine, 352; 21: 2158-2160.
Steliarova-Foucher E., Stiller C. et al. (2004), "Geographical patterns and time trends of cancer incidence and survival among children and adolescents in Europe since the 1970s (the ACCIS project): an epidemiological study", The Lancet, 364: 2097-105.
Tanneberger S., Cavalli F., Pannuti F., eds., Cancer in Developing Countries: The Great Challenge for Oncology in the 21st Century (Munich: Zuckschwerdt, 2004).


Promoting a smoke-free environment for children


In the first global initiative of its kind, the International Union Against Cancer (UICC) and cancer-fighting organizations in every region will lead a year-long effort to promote smoke-free environments for children. "I love my smoke-free childhood" will launch on World Cancer Day, 4 February, with these messages for parents:

Avoid smoking at home or in a car
Caution children to stay away from second-hand smoke and keep children away from places that allow smoking
Teach children there is no safe level of second-hand smoke
Do not smoke while pregnant or in the vicinity of someone who is pregnant
Use a smoke-free childcare centre
If you are a smoker, ask your doctor what you can do to stop
Become a role model for your child - do not smoke
Protecting our children from second-hand smoke

To back these messages, UICC is publishing a 40-page expert report, "Protecting our children from second-hand smoke".

This expert report sets out the health consequences to children of exposure to environmental tobacco smoke and makes detailed recommendations on safeguarding children in homes and cars, schools, childcare facilities, and other public places. Authors include Dr Jonathan Samet, senior scientific editor of the 2004 and 2006 US Surgeon General's reports on smoking and health. Copies available on requestThis e-mail address is being protected from spam bots, you need JavaScript enabled to view it from UICC.

Today's children, tomorrow's world

"I love my smoke-free childhood" is the first full-year initiative in "Today's children, tomorrow's world", a five-year global focus on children in UICC's World Cancer Campaign, launched on World Cancer Day 2007.

The campaign presents simple steps parents can share with children to prevent cancer later in life: eating a balanced diet, learning about vaccines for virus-related liver and cervical cancers and avoiding over-exposure to the sun.

"Forty percent of cancers are preventable through healthy habits. The first step toward prevention is education, starting with parents and children. Every success story means fewer lives lost," says Isabel Mortara, UICC executive director.

"Tobacco-related cancers lead the list of preventable deaths and hundreds of thousands of people who have never smoked die each year from diseases caused by second-hand smoke. That's why this initiative is so important."

Tobacco causes one in five of all cancer cases worldwide and one in three in high-income countries. Tobacco killed more than five million people in 2005. If current trends continue, by 2030 tobacco will kill as many as 8.3 million people each year.

In addition to targeting individuals, the World Cancer Campaign encourages decision-makers to put cancer on the public agenda. A growing number of countries have passed 100% smoke-free legislation, banning smoking in all enclosed public places without exception.

"Countries with 100% smoke-free laws should be commended for their legacy to healthier families. In these nations the percentage of children exposed to second-hand smoke has decreased over time," says Dr Franco Cavalli, UICC president. "While this trend is encouraging, this approach alone will not protect children from second-hand smoke. That's why educating parents is so crucial."

Smoke-free symbol competition

On World Cancer Day, the UICC is launching a design competition for a logo signalling a "smoke-free" home or car. The competition is open to individuals, UICC members and creative agencies. The winning artwork will be announced on 5 May and awarded US $5,000. For further details contact JJ Divino, World Cancer Campaign coordinatorThis e-mail address is being protected from spam bots, you need JavaScript enabled to view it .

Tobacco control and cancer prevention:
Resources for reporters

The International Union Against Cancer: Founded in 1933, the International Union Against Cancer (UICC) is the world's only truly global consortium of cancer-fighting organizations, with almost 300 members spanning Africa, the Americas, Asia-Pacific, Europe, and the Middle East. Located in Geneva, Switzerland, UICC has members in more than 90 countries.

World Cancer Congress 2008: The World Cancer Congress offers reporters access to the world's leaders in cancer control. The next Congress will convene in Geneva, 27-31 August. The meeting offers new research on topics such as tobacco control and cervical cancer vaccination, as well as ongoing evidence-based solutions to cancer control in every region.

GLOBALink: UICC's tobacco control network, GLOBALink, offers an in-depth database of resources for reporters and the tobacco-control community. GLOBALink provides open access to an RSS aggregating tobacco news from around the world.

ORPHANET PROJECT


ORPHANET MISSION

ORPHANET is a database dedicated to information on rare diseases and orphan drugs. Access to this database is free of charge.
ORPHANET aims to improve management and treatment of genetic, auto-immune or infectious rare diseases, rare cancers, or not yet classified rare diseases.

ORPHANET offers services adapted to the needs of patients and their families, health professionals and researchers, support groups and industry.

ORPHANET created an European portal (www.orpha.net), which gives free access for information, to any person. Romania is represented in this project from 2004 by the ORPHANET - ROMANIA team (from UMF, Iasi), leaded by Prof. Dr. Mircea Covic.


Description of services 
       
Search by disease
To obtain information about a rare disease, the specialized outpatient clinics, clinical laboratories, research projects, patients support groups and other interesting web sites in the world, search by disease name. Data collection is in progress in 20 European countries.

Search by clinical sign
Orphanet provides a facility to retrieve diseases by signs and symptoms. It is based on an algorithm, which defines a diagnosis by a set of phenotypic components all having the same weight, using a fixed vocabulary. This tool aims at assisting physicians in their diagnosis making approach

Outpatient clinics
For each disease, all the types of outpatient clinics which are relevant for the diagnosis or the management of the disease, are mentioned. The clinics may be located in public or private institutions, depending on the country. As they are numerous and as they are not difficult to identify, the list is not provided.
In addition some highly specialized clinics are mentioned. These clinics provide an expert service for one disease or a group of diseases. The way they are selected is described in the section on procedures. By no mean, these clinics are the only places where patients can be adequately diagnosed and treated. They are places where to refer patients when the professional in charge of a patient feel that advice from an expert is needed.

Research projects
The research projects which are listed are those which are currently funded by public agencies or by charities after a competitive and independent evaluation process.

Registries
Both true registries with complete ascertainment of cases, and collections of cases which are usually hospital-based are listed. Only registries which are funded by public agencies or by well-established charities, are mentioned.

Clinical tests
The clinical tests which are mentioned are those which are disease specific and which require special expertise.

Licensing
In some countries, certain tests can only be performed by laboratories or physicians which have a licensing or a certification for that activity. It only applies to a limited number of activities in a limited number of countries.

Support groups
All the patients support groups which are listed are those which are relevant for the patient and the patient's family. Some support groups are disease-specific, some others are handicap- specific.

Laboratory / Department
This is a list of all the laboratories and departments which are specialized in one or several rare diseases. It allows you to find their address if you know their name or their field of activity by location.

Drugs
All the drugs which are mentioned are those which are either orphan drugs or very specific drugs used to treat rare conditions.

Professionals
This is the list of all the professionals whose activity is mentioned in Orphanet.
See also: http://ec.europa.eu/health/ph_threats/non_com/rare_diseases_en.htm




                                                                 
                  

P.A.V.E.L. Association website has been assigned the SECOND PRIZE at the 2007 Cancer on the Internet Award and Mention of Honour competition!

The 2007 Cancer on the Internet Award and Mention of Honour will be awarded on 23 September, during the ESO Cancer on the Internet Observatory, with the Patient Forum during ECCO 14, from Barcelona, Spain.
Award winners will be invited to attend the Observatory and will receive their prize during this event.
Dr. Vinod Joshi (2006 1st prize winner) will present the prize to the attendee.

Sponsor
The Cancer on the Internet Award and Mention of Honour is an original initiative of the European School of Oncology that is supported by the School’s private donors. The organisation and promotion of the Award  are made possible through an unrestricted educational grant provided by Novartis Oncology, supporting member of the ESO programme Sharing Progress in Cancer Care.

   
   
                                                                        
                                                                             




EUROPEAN   PARLIAMENT
2004   2009

21.5.2007    0052/2007


WRITTEN DECLARATION


pursuant to Rule 116 of the Rules of Procedure

by Antonios Trakatellis, Françoise Grossetête, Karin Jöns, Philippe Busquin and Adamos Adamou
on the need for a comprehensive strategy to control cancer

Lapse date: 27.9.2007
 
0052/2007

Written declaration on the need for a comprehensive strategy to control cancer

The European Parliament,
–    having regard to Rule 116 of its Rules of Procedure,
A.    whereas, in accordance with the Treaties, the Community is called upon to play an active role in the field of health, whilst complying with the principle of subsidiarity,
B.    whereas cancer remains the leading cause of death in Europe,
C.    whereas today we know that one-third of all cancers are preventable and that one-third can be detected early, thus leading to successful treatment,
1.    Believes that if cancer is addressed by means of a comprehensive strategy it will soon no longer be the leading cause of death in Europe;
2.    Calls on the Council and Commission to formulate a comprehensive strategy addressing the four basic cancer control factors:
    a. prevention
    b. early detection
    c. diagnosis, treatment and follow-up
    d. palliative care;
3.    Calls on the Commission to review the relevant Community legislation and measures, upgrading and modifying them in keeping with new scientific advances;
4.    Calls on the Commission to:
    -  encourage research and innovation in the area of primary prevention and early detection of cancer
    -    promote relevant information campaigns for the general public and for all healthcare providers
    -    ensure that Community legislation contains incentives for industry and researchers alike in order to secure ongoing research and guarantee new generations of medicines and new treatments to combat and control cancer
    -    secure through networks the dissemination of best practices in order to ensure that citizens have access to the best available treatment;
5.    Instructs its President to forward this declaration, together with the names of the signatories, to the Council and the Commission.


European Code Against Cancer

Any recommendation made to reduce cancer occurrence should not be one which could lead to an increased risk of other diseases. The recommendations which comprise the revised European Code Against Cancer should, if followed, also lead to improvements in other aspects of general health. It is also important to recognise from the outset that each individual has choices to make about their lifestyle some of which could lead to a reduction in their risk of developing cancer. These choices, and the rationale underlying their recommendation, are presented below.

Certain cancers may be avoided and general health improved if you adopt a healthier lifestyle:

- Do not smoke; if you smoke, stop doing so. If you fail to stop, do not smoke in the presence of non-smokers 
- Avoid Obesity 
- Undertake some brisk, physical activity every day 
- Increase your daily intake and variety of vegetables and fruits: eat at least five servings daily. Limit your intake of foods containing fats from animal sources 
- If you drink alcohol, whether beer, wine or spirits, moderate your consumption to two drinks per day if you are a man and one drink per day if you are a woman 
- Care must be taken to avoid excessive sun exposure. It is specifically important to protect children and adolescents.
- For individuals who have a tendency to burn in the sun active protective measures must be taken throughout life 

- Apply strictly regulations aimed at preventing any exposure to known cancercausing substances. Follow all health and safety instructions on substances which may cause cancer. Follow advice of national radiation protection offices

There are public health programmes that could prevent cancers developing or increase the probability that a cancer may be cured:

- Women from 25 years of age should participate in cervical screening.This should be within programmes with quality control procedures in compliance with European Guidelines for Quality Assurance in Cervical Screening
- Women from 50 years of age should participate in breast screening. This should be within programmes with quality control procedures in compliance with European Union Guidelines for Quality Assurance in Mammography Screening 
- Men and women from 50 years of age should participate in colorectal screening. This should be within programmes with built-in quality assurance procedures 
- Participate in vaccination programmes against Hepatitis B Virus infection
 
This study was supported by the Europe Against Cancer programme of the European Community
http://www.cancercode.org/code.htm

EUROPEAN CHARTER  FOR  FAMILY CARERS
H A N D I C A P COFACE, Proposal
2007

Preamble
The European Charter for family carers is based on the major International Conventions already drafted or in the process of being developed (under the auspices of the United Nations, Council of Europe, European Union, European Disability Forum – EDF) to deal directly with the quality of life, dignity, rights and full citizenship of persons with disabilities and their families.
It implements the “Assistance to Family Carers” project carried out by some member organisations of COFACE-Handicap between 2005 and 2006.
The Charter is designed as a reference tool to be proposed to various organisations representing persons with disabilities and complex dependency needs and their families within the European Union, as well as to the Union’s Institutions.
This Charter contributes to reconcile family life and working life by allowing a free and informed choice of carer, in accordance with the goals of the Lisbon strategy.

1- Definition of family carer
A family carer is “a non-professional person who provides primary assistance with activities in daily life, either in part or in whole, towards a dependent person and his/her immediate circle. This regular care may be provided on a permanent or nonpermanent basis and may assume various forms, in particular: nursing, care, assistance in education and social life, administrative formalities, co-ordination, permanent vigilance, psychological support, communication, domestic activities, etc.”

2- Choice of family carer
Persons with disabilities and complex dependency needs should at all times have the ability to choose their non-professional carer from among members of their family or immediate circles. If these persons are unable to express their choice,
every endeavour must be made so that their wishes are respected.
Reciprocally, family carers must have the option of fulfilling their care-giving role on a full or part-time basis to be able to reconcile it with their own work activities. Such choice must be free, informed and open to re-assessment at all times.

3- National solidarity
The fact that persons with disabilities and complex dependency needs may choose their own non-professional carers, and the effective solidarities within the family, in no way release the national and local public authorities from their respective
obligations towards those receiving and those providing care. Furthermore, such care provision should meet official recognition in terms of social rights and all kinds of social support.
Care thus provided could also be subject to legal financial recognition.

4- Family solidarity
Generally speaking, families are one of the best contexts in which persons with disabilities and complex dependency needs are able to fulfil their lives.
Solidarity within families should be complementary to and in keeping with Public Solidarity.

5- The place of the family carer within the health system
The place of the family carer should be recognised and as such taken into consideration in all health and social protection policies.
Such social recognition should “formalise” the role of family carers.
Family carers are entitled to care facilities and various networks providing moral and psychological support to which they may turn when in need.

6- Official status of the family carer
As part of their caring role, family carers should benefit from the social rights and resources required to provide assistance to persons with disabilities and complex dependency needs in all daily activities and social life.

Family carers have the right to enjoy equal treatment in terms of:

 labour and employment: working time arrangements, holidays, return to work support, preservation of health and social protection schemes;
 universal access: transport, housing, culture, built environment, communication, etc., through financial compensation;
 retirement: through official recognition of their status as carers;
 official recognition of prior experience in their caring role.

7- Quality of life
As regards quality of life, both the person receiving care and his/her carer are interdependent. It is therefore appropriate to develop all preventive policies (illness, weariness, excess work load, exhaustion, etc.) enabling the family carer to fully meet the person’s needs.
Both the carer and the person receiving care should benefit from the support of approved and quality local facilities and services.

8- Right to respite
This is a fundamental necessity to be met in terms of support, occasional and/or emergency assistance, substitution services and/ or top-quality temporary care centres during various periods of time depending on needs (holiday, rest, health, etc.)

9- Information/Training
Family carers should be informed about their rights and duties.
They should have access to all information that will help them fulfil their role as carers.
They should also have access to all special training programmes aimed at improving the quality of their care giving.
A training system should be set up by public authorities in full consultation with the representative bodies.

10- Assessment
Assessment should be on-going, involving both the person receiving care and the family carer as well as the public authorities:
  - Assessment of both the person assisted and carer’s needs.
  - Assessment of the services rendered at regular intervals and/or on demand: public authorities should ensure that quality care is properly implemented and formulate any necessary recommendations.

The person receiving care and the family carer are the best placed to determine their needs and how to fulfil them. It is imperative that they either participate or be represented by a person of their choice in the assessment process.

COFACE-Handicap – 17 rue de Londres – B-1050-BRUXELLES
www.coface-eu.org

New radiation therapy treatment developed


A new radiation therapy treatment developed by the University of Helsinki could offer hope to the thousands of patients a ro und the world suffering f ro m head-and-neck cancers.

In their Phase I/II study, researchers at the Finnish university found that locally recurring head-and-neck cancers responded positively to Bo ro n Neut ro n Capture Therapy (BNCT).

An experimental form of targeted radiation treatment for cancer, BNCT involves first infusing a bo ro n-containing compound (bo ro nophenylalanine) into a peripheral vein until it accumulates in the cancer tissue. The cancer is then subsequently irradiated with neut ro ns obtained f ro m a nuclear reactor, which causes the bo ro n atoms to split within the cance ro us tissue as a result of the bo ro n neut ro n capture reaction. The resulting smaller particles cause a large radiation effect within the tumour tissue, which dest ro ys the cancer cells.

'The technique allows targeting of a high dosage of radiation to the tumour while allowing sparing of the adjacent normal tissues f ro m the highest doses of radiation,' reads a statement f ro m the University of Helsinki . 'Bo ro n-mediated targeting of radiation allows treatment of patients who can no longer be treated with conventional radiation therapy.'

The novel therapy is administered as a single one-day treatment that may be repeated if necessary.

Reporting the results of their clinical trials in the International Journal of Radiation Oncology, Biology & Physics, the researchers believe their findings to be clinically significant as they open up a new field for BNCT. The technique has thus far only been used for the treatment of some brain tumours.

The trials involved 12 patients diagnosed with head-and-neck cancers which had recurred locally after surgery and conventional radiation therapy. Ten out of the 12 patients had substantial tumour shrinkage following BNCT, and in seven cases the scientists found that the tumour had disappeared completely. As for the adverse effects of the treatment, they are reported as moderate and resembling those of conventional radiation therapy.

The sponsors, Boneca Corporation, have decided to expand the study, and up to 30 subjects will now be allowed to enter the study p ro tocol. This will be in addition to other phase I and II clinical trials evaluating BNCT in the treatment of primary glioblastoma (a highly malignant brain tumour) and anaplastic ast ro cytomas (a type of brain tumour) that have recurred after conventional radiation therapy has failed.

'Our plan is to investigate BNCT in the treatment of cancers located elsewhere in the body that cannot be effectively managed by any known treatment,' says P ro fessor Heikki Joensuu.

'The current treatment is a result of a long period of research, a p ro of of academic expertise, and a model for effective collaboration between the Helsinki University Central Hospital, the University of Helsinki, VTT Technical Research Centre of Finland, and the company,' says Boneca Corporation' s Managing Director, Markku Pohjola.

So far, over 100 cancer patients have received BNCT at the Boneca Corporation' s facilities.

For further information, please visit:
http://www.boneca. fi
http://www.redjourn al.org
Category: Miscellaneous

COST Program

COST is one of the oldest and largest network structures for scientist and approx. 30 000 scientists are co-operating within the frame of COST.

COST supports the co-operation of Scientist Although it does not provide funding for research activities it will fund the co-operation efforts of scientific groups across Europe (mainly traveling costs to meetings, workshop/conference organization costs, dissemination costs, short scientific exchanges of researchers and other instruments) .
COST is "bottom up" that means it has no specific targeted research activities and any scientific technical area can be supported by COST.

COST is multidisciplinary and supports the widest range of scientific/technical cooperation.
COST is international and enables also the participation from laboratories outside the European members.

How can I join COST?
Depending on your own position and that of the Action (for details visit the COST website and look for the relevant Action details) there are series of different forms of co-operation.

1. If your laboratory or institution is in a COST member country (this has nothing to do with your own nationality) you can join the Action as:

1.1. Member of the Management Committee of an Action in case your country has not yet nominated 2 scientists but is already signatory of the Action.

1.2. Member of the Management Committee if your country is not yet signatory of the Action. In that case your country has first to sign its participation in the relevant Action. (Note: If your country wishes to become member 12 months after the approval of the Action the approval of the Management Committee of the Action is required)

1.3. Member of a working group of an Action

1.4. Invited expert to specific events of an Action (Meetings of the MC, WG, workshop participation etc.)

FORMALITIES REQUIRED - What you have to do:
For 1.1
Contact your COST National Coordinator (CNC) who can officially nominate you as representative of your country to the MC committee. It would be recommended that you also contact the chair of the Action about your interest.

For 1.2
Contact your COST National Coordinator (CNC) who can launch the participation of your country in the relevant Action. He will analyze whether the national funding for the Actions activity is there. The CNC can then launch the official participation of your country in the relevant COST Action and he can officially nominate you as representative of your country to the MC committee. In case of an established COST Action (more than 12 months after CSO there is also the agreement of the MC committee required. In any case it would be recommended that you contact the chair of the Action about your interest.

For 1.3
Contact the chair of the Action (directly or via a colleague from the Action or via the COST Office) and obtain the invitation to participate in the suitable COST working group.

For 1.4
Contact the chair of the Action (directly or via a colleague from the Action or via the COST Office) and obtain the invitation to participate in a specific event of the Action.

2. If your Institution is in a non-COST member state there is the possibility

2.1. to participate from an Institution with the status of "non-COST participating Institution" if this was recognized by the Committee of Senior Officals (CSO) as in the mutual benefit.This allows to participate in the MC and WG meetings although without voting right The participants from non-COST countries are normally not eligible for reimbursement of travel expenses although for specific countries exceptions may be possible.

2.2. To participate as invited expert to specific events of an Action (Meetings of the MC, WG, workshop participation etc.)

 http://www.cost. esf.org/index. php?id=9# faq


SearchMedica.com/oncology

SearchMedica.com gives you quick, easy access to professional medical content that is clinically focused and specific to oncology practice. No irrelevant search results, no weeding through unfamiliar resources—and the assurance that the origins of your search results have been reviewed and approved by an expert team from The Oncology Group: Oncology, Oncology News International, and CancerNetwork.com.
Additionally, SearchMedica.com/oncology offers members the benefit of a bi-weekly e-newsletter, Clinical Search Tips, which highlights the best online search results related to clinical news and developments.  To guarantee you don’t miss an issue of Clinical Search Tips, simply visit SearchMedica.com/oncology and register.

To see how SearchMedica focuses and sorts your results, making it quick and simple to find what you're looking for, try a sample search on HER2 negative breast cancer.
At SearchMedica, we’re committed to providing medical professionals a search tool that goes beyond what broad-based consumer search engines offer.


                       
                                    
                                                                                  STEFANIA


The Official Opening of the P.A.V.E.L. Resources and Services Center

(
within the framework of the Project "Building the Future for the Children of Romania", financed by The International Union Against Cancer (U.I.C.C., www.uicc.org) and by the Pharmaceutical Company Sanofi Aventis, France -  "My Child Matters" competition)

had place on June 5th, 2007, 12:30 p.m.
at the Oncologic Institute "Prof. Dr. Alex. Trestioreanu" (ground floor, room 116, next to the Chapel)
                                                       
   

    You may read more at the page: Programs


The Conference of INGOs of the Council of Europe

on 30 January 2007, Council of Europe, Palais de l'Europe, Strasbourg

President : Annelise OESCHGER
OING Conf (2007) OJ 1 rev
  
   
  Speaking in front of the representatives of INGOs

Draft Agenda

1.  Opening of the meeting by the President (Annelise OESCHGER)
 2.  Adoption of the Agenda [OING Conf (2007) OJ1 ]
 3.  Approval of the report of the meeting of 6 October 2006 [OING Conf (2006) CR2]
 4.  Exchange of views with the Secretary General of the Council of Europe, Terry DAVIS (5pm)
 5.  Intervention by the Chairman of the Ministers’ Deputies, Ambassador Guido BELLATTI CECCOLI, Permanent Representative of San Marino to the Council of Europe (3pm)
 6.  2006 Activity Report of the INGO Liaison Committee: debate and adoption
Jean-Marie HEYDT (Vice-President of the Liaison Committee)
- One example: Forum on Intercultural Dialogue (Strasbourg, 23-25 November 2006), Bastian KUNTZEL (Delegate of the Liaison Committee to the Advisory Council on Youth), Brigitte LUDMANN (Youth Express Network)
 7.  2006 Activity Report of the Groupings: debate and adoption
Jean-Claude GONON (General Rapporteur of the Liaison Committee)
- One example: Act for everyone’s health – follow-up to the Seminar on the participation of Romanian civil society in the European construction process (*Bucharest, 4-6 May 2006), Paul DE RAEVE (President of the Health Grouping, Olga CRIDLAND (PAVEL Association)
 8.  Outcome and follow-up to the Seminar on the Participatory Element of Democracy (Strasbourg, 4-5 December)
- Report by Loïc TRIBOT LA SPIERE (General Rapporteur of the Seminar)
- Debate on the drafting of a code of ethics by the Conference of INGOs
 9.  Discussion and adoption of a resolution on the situation of the civil society in Belarus
 10.  Examination of the draft recommandation of the Committee of Ministers on the legal status of the NGOs, Cyril RITCHIE (President of the Civil Society and Democracy in Europe Grouping)
 11.  The Expert Council of the INGO Conference for the monitoring of national NGO legislation: debate on its mandate, Marc LEYENBERGER (chargé de mission)
 12.  Mobilisation of the INGOs, Jenny SCHULER, André ZAWADZKI , Rapporteurs of the Liaison Committee) and presentation of the INGO database Jane CROZIER (Division of NGOs and Civil Society), Christophe DUFOUR (consultant)
 13.  Presentation and discussion of the revised Rules of Procedure of the Conference of INGOs and of the Liaison Committee and the Thematic Groupings, Claude-Laurent GENTY (Honorary President of the Liaison Committee)
 14.  Verification and Dispute Committee - election of a member (Article 14 of the Rules of Procedure of the Conference of INGOS )
16.  Date of the next meeting of the Conference of INGOs of the Council of Europe (26 June 2007)
 
http://www.coe.int/t/e/ngo/public/Plenary_Conference/Documents/2007/01_OJConference300107_en.asp


The International Childhood Day, celebrated in hospitals
1 June 2007

        
        



A Happy Easter  to everybody!!!!

We thank to the Foundation Kinderen in Nood, to the Dutch school children, to other donors and volunteers, who through their gifts and help, offered a joy to the ill children, at this Easter!



UICC World Cancer Campaign 2007 - 2012     

"Today's children, tomorrow's world"

                                                                           
 
 Cancer. Children. 

Together, those two words strike fear in the hearts of parents everywhere.

But add a third word - prevention - and the message becomes one of hope, health and life stretching from youth through adulthood.

Prevention is the focus of "Today's children, tomorrow's world", the second phase of the World Cancer Campaign that will launch on World Cancer Day, 4 February 2007.

At the heart of the campaign will be messages to parents, politicians and health-care professionals. UICC and its member organizations will share information about simple lifestyle changes and cutting-edge vaccines that can prevent many forms of cancer.

"This campaign is about preventing cancer now and it is about the future," says Franco Cavalli. "By teaching today's children, we can give them a better, healthier world tomorrow."
 
Many people around the world believe that cancer is fate - just something that happens to them if they are unlucky. They believe that they have no control over their chances of developing a cancer.

In fact, more than one-third of all cancer cases worldwide – almost four million cases each year – can be prevented if we act on what we already know and apply that knowledge in our daily behaviour. Tobacco use, diet, nutrition and exercise, sun safety and vaccination against cancer-causing viruses all play a role in influencing cancer risk. Simple changes in lifestyle can be taken to reduce cancer risk.

The aim of the “Today’s children, tomorrow’s world” campaign is to scale up awareness of what we can do to prevent cancer and to change people’s behaviour in that light.
 
Healthy habits established early in life have a significant impact in later years. Behaviour is already formed before adolescence. The environment in which children grow up – at home, in school, and in the community – powerfully influences their behaviour later on, whether this regards tobacco use and exposure to second-hand smoke, diet and physical activity, or smart behaviour in the sun. Policymakers’ decisions about cancer vaccination at an early age determine how far children and young people will be protected against cancers of the liver or cervix.

For all these reasons, the “Today’s children, tomorrow’s world” campaign will focus on the young.

Parents have a key role in influencing healthy habits in their children. We need to help parents to understand the long-terms benefits of a healthy lifestyle and to engage them as partners in cancer prevention activities that start early in life.

From a prevention perspective, there is strong justification for focusing the campaign on four main cancer-causing factors: (1) tobacco and tobacco-free environments, (2) diet, alcohol and exercise, (3) preventing infections that may cause cancer, and (4) being sun smart. [1]

The campaign message globally consists of four key precepts:

 - provide a smoke-free environment for children ("no smoking in homes")
 - encourage an energy-balanced lifestyle (regular physical activity and low-fat diet, avoid obesity)
 - learn the facts about vaccinations (HBV & HPV)
 - teach your children to be sun-smart

In the course of this campaign, UICC, its member organizations and its partners throughout the world will engage in awareness-building, information-sharing, educational activities and community mobilization.



"My Child Matters"


In 2005, the International Union Against Cancer (UICC) launched its World Cancer Campaign, with an initial focus on childhood cancer under the theme "My child matters". Over the coming years, the campaign will address many aspects of the fight against cancer.

There is an urgent need to scale up awareness of the fight against cancer. Information, education and communication, especially with respect to prevention, early detection, diagnosis and treatment, need strategic focus in order to bring about socio-behavioural changes. In recent years, the fight against cancer has taken a back seat to other public health priorities such as HIV/AIDS, tuberculosis and malaria.

Each year, 7 million people die of cancer and 11 million new cases are diagnosed. Cancer claims twice as many lives worldwide as AIDS. In fact, more than 12% of all deaths every year are caused by cancer. That’s more than AIDS, tuberculosis, and malaria put together.

The UICC World Cancer Campaign is a response to the Charter of Paris adopted during the 2000 World Summit Against Cancer for the New Millennium. This calls for “an invincible alliance – between researchers, healthcare professionals, patients, governments, industry and media – to fight cancer and its greatest allies, which are fear, ignorance and complacency.”

No other international organisation has built on this momentum to coordinate activities and organise related annual events at the global level. Therefore, UICC, through its member organisations and partners, has launched the World Cancer Campaign, including the annual commemoration of World Cancer Day on 4 February. Specific campaigns will be planned along selected themes to highlight awareness of the cancer burden in participating countries and gather funds for cancer initiatives.


2006

UICC and The Lancet Oncology announce €600,000 initiative to tackle cancer in children in the developing world.
12 innovative projects in Indonesia, Romania, Kenya, Peru, Bolivia, and Mali - countries targeted by the International Union Against Cancer (UICC) - will receive up to €50,000 each to improve cancer care for children, announce The Lancet Oncology and the UICC today, in one of the largest initiatives to tackle childhood cancer in resource-poor settings
London, 3 January 2007 - 12 innovative projects in Indonesia, Romania, Kenya, Peru, Bolivia, and Mali - countries targeted by the International Union Against Cancer (UICC) - will receive up to €50,000 each to improve cancer care for children, announce The Lancet Oncology and the UICC today, in one of the largest initiatives to tackle childhood cancer in resource-poor settings.


"My child matters" initiative funds 12 new projects
12 January 2006

At its meeting on 13-14 December 2006, the "My child matters" advisory steering committee agreed to fund 12 new projects in six low- and middle-income countries. The countries are Bolivia, Indonesia, Kenya, Mali, Peru and Romania, and the projects selected are listed below.

"My child matters" is a UICC partnership with the Sanofi-Aventis department of humanitarian sponsorship.
 


Romania

1. Improving the diagnostic services for children with cancer - Doina Mihaila, St Mary's Emergency Children's Hospital, Iasi.
2. Assessing the childhood cancer burden in Romania and ways of improving it - Adela Ratiu, Institute of Oncology "Prof Dr Al Trestioreanu", Bucharest.
3. Building a future for Romanian children - Olga-Rodica Cridland, Association PAVEL, Bucharest.
An article on the 12 projects selected will appear in the Lancet Oncology in January 2007.

The advisory steering committee also agreed to continue funding in 2007 for the 14 pilot projects in 10 resource-constrained countries - Bangladesh, Egypt, Honduras, Morocco, Philippines, Senegal, Tanzania, Ukraine, Vietnam and Venezuela - that completed their first year of operation in 2006.


WHAT IS CANCER?

Cancer is a generic term for a group of more than 100 diseases that can affect any part of the body. Other terms used are malignant tumours and neoplasms. One defining feature of cancer is the rapid creation of abnormal cells which grow beyond their usual boundaries, and which can invade adjoining parts of the body and spread to other organs, a process referred to as metastasis. Metastases are the major cause of death from cancer.

FACTS ABOUT CANCER

Cancer is a leading cause of death worldwide. From a total of 58 million deaths worldwide in 2005, cancer accounts for 7.6 million (or 13%) of all deaths. The main types of cancer leading to overall cancer mortality are:

lung (1.3 million deaths/year);
Stomach (almost 1 million deaths/year);
Liver (662,000 deaths/year);
Colon (655,000 deaths/year) and
Breast (502,000 deaths/year).
More than 70% of all cancer deaths in 2005 occurred in low and middle income countries. Deaths from cancer in the world are projected to continue rising, with an estimated 9 million people dying from cancer in 2015 and 11.4 million dying in 2030.

The most frequent cancer types world wide are:

Among men (in order of number of global deaths): lung, stomach, liver, colorectal, oesophagus and prostate.
Among women (in order of number of global deaths): breast, lung, stomach, colorectal and cervical.

QUICK CANCER FACTS

40% of cancer can be prevented (by a healthy diet, physical activity and not using tobacco).
Tobacco use is the single largest preventable cause of cancer in the world. Tobacco use causes cancer of the lung, throat, mouth, pancreas, bladder, stomach, liver, kidney and other types; Environmental tobacco smoke (passive smoking) causes lung cancer.
One-fifth of cancers worldwide are due to chronic infections, mainly from hepatitis B viruses HBV (causing liver), human papilloma viruses HPV (causing cervix), Helicobacter pylori (causing stomach), schistosomes (causing bladder), the liver fluke (bile duct) and human immunodeficiency virus HIV (Kaposi sarcoma and lymphomas).

WHAT CAUSES CANCER?

Cancer occurs because of changes of the genes responsible for cell growth and repair. These changes are the result of the interaction between genetic host factors and external agents which can be categorized as:

physical carcinogens such as ultraviolet (UV) and ionizing radiation
chemical carcinogens such a asbestos and tobacco smoke
biological carcinogens such as
infections by virus (Hepatitis B Virus and liver cancer, Human Papilloma Virus (HPV) and cervical cancer) and bacteria (Helicobater pylori and gastric cancer) and parasites (schistosomiasis and bladder cancer)
contamination of food by mycotoxins such as aflatoxins (products of Aspergillus fungi) causing liver cancer.
Tobacco use is the single most important risk factor for cancer and causes a large variety of cancer types such as lung, larynx, oesophagus, stomach, bladder, oral cavity and others . Although there are still some open questions, there is sufficient evidence that dietary factors also play an important role in causing cancer. This applies to obesity as a compound risk factor per se as well as to the composition of the diet such as lack of fruit and vegetables and high salt intake. Lack of physical activity has a distinct role as risk factor for cancer. There is solid evidence about alcohol causing several cancer types such as oesophagus, pharynx, larynx, liver, breast, and other cancer types.

HOW DOES CANCER DEVELOP?

Cancer arises from one single cell. The transformation from a normal cell into a tumour cell is a multistage process, typically a progression from a pre-cancerous lesion to malignant tumours. The development of cancer may be initiated by external agents and inherited genetic factors. Ageing is another fundamental factor for the development of cancer. The incidence of cancer rises dramatically with age, most likely due to risk accumulation over the life course combined with the tendency for cellular repair mechanisms to be less effective as a person grows older.

HOW CAN THE BURDEN OF CANCER BE REDUCED ?

The existing body of knowledge about the causes of cancer and about interventions to prevent and manage cancer is extensive. Cancer control is understood as public health actions which are aimed at translating this knowledge into practice. It includes the systematic and equitable implementation of evidence-based strategies for cancer prevention, early detection of cancer and management of patients with cancer.

Up to one third of the cancer burden could be reduced by implementing cancer preventing strategies which are aimed at reducing the exposure to cancer risk mainly by:
changes in tobacco and alcohol use, and dietary and physical activity patterns
immunization against HPV infection
the control of occupational hazards
reducing exposure to sunlight
Another third of the cancer burden could be cured if detected early and treated adequately.
Early detection of cancer is based on the observation that treatment is more effective when cancer is detected earlier. The aim is to detect the cancer when it is localized. There are two components of early detection programmes for cancer:
Education to promote early diagnosis by recognizing early signs of cancer such as: lumps, sores, persistent indigestion, persistent coughing, and bleeding from the body's orifices; and the importance of seeking prompt medical attention for these symptoms.
Screening is the identification by means of tests of people with early cancer or pre-cancer before signs are detectable. Screening tests are available for breast cancer (Mammography) and Cervical cancer (Cytology tests).
Treatment of cancer is aimed at curing, prolonging life and improving quality of life of patients with cancer. Some of the most common cancer types such as breast cancer, cervical cancer and colorectal cancer have a high cure rate when detected early and treated according to best evidence. The principal methods of treatment are surgery, radiotherapy and chemotherapy. Fundamental for adequate treatment is an accurate diagnosis by means of investigations involving imaging technology (ultrasound, endoscopy, radiography) and laboratory (pathology).
Relief from pain and other problems can be achieved in over 90% of all cancer patients by means of palliative care. Effective strategies exist for the provision of palliative care services for cancer patients and their families, even in low resource settings.

WHO'S STRATEGY FOR PREVENTION AND CONTROL OF CANCER

Following the adoption of a Cancer Prevention and Control Resolution at the 58th WHA on May 2005, WHO is developing the Global WHO Cancer Control Strategy. The Strategy aims at reducing the cancer burden and cancer risk factors as well as improving the quality of life of patients and their families worldwide by means of planning and implementing cancer prevention and control strategies. The cancer control strategy is integrated into the overall WHO chronic disease prevention and control framework of the Department of Chronic Diseases and Health Promotion. The cancer control strategy is based on the following guiding principles:

People-centered: the ultimate goal is to improve the well-being of the people, communities, families and individuals.
Equity: the strategy focuses on the needs of low-and middle-income countries and of vulnerable and marginalized populations.
Ownership: the strategy guarantees the strong commitment and active involvement of key stakeholders in each stage of the decision-making process and implementation.
Partnership and multisectoral approach: the strategy ensures the wide participation and collaboration of all sectors: public and private,
Sustainability: the strategy emphasizes the need for national governments and partners collectively strive for financial and technical self-reliance, to ensure the continuation of benefits from established programmes after major assistance has been completed.
Integration: the strategy is embedded within the overall framework of chronic disease prevention and control and other related areas (such as environmental health, communicable diseases, etc).
Stepwise approach: the strategy considers the implementation of interventions, at a national or sub-national level, in a sequential manner.
Evidence-based: the strategy is based on research results, programme evaluation, economic analysis, best practice, and lessons from countries.
WHO, in cooperation with its cancer research agency, the International Agency for Research in Cancer (IARC), and other organizations of the United Nations system, will provide the leadership for international cancer prevention and control and will develop the following actions:

Advocacy and political commitment for cancer prevention and control
Generation of new knowledge and dissemination and diffusion of existing knowledge to facilitate the application and programme delivery of evidence-based approaches to cancer control
Development of standards and tools for guiding effective cancer control planning and implementation of evidence-interventions for prevention, early detection, treatment and palliative care
Facilitating the development of multisectoral networks of cancer control partners at the global, regional and national levels
Building capacity for developing and implementing effective policies and programmes and strengthening health systems
Provision of technical assistance for the rapid, effective and efficient translation of evidence-based cancer control interventions into public health policies and programmes in developing countries.

World Health Organization
http://www.who.int/mediacentre/factsheets/fs297/en/


Preventable Cancers

Global trends in cancer control can be significantly improved through sustained strategies of primary prevention and early detection. Even with today’s sophisticated communications technology, most people are not aware that most cancers are preventable. In low-and middle-income countries, 80% to 90% of cancer patients already suffer from advanced and incurable cancers at the time of diagnosis. Screening, early detection and lifestyle changes are critical to avoid this trend from continuing. From a global perspective, there is strong justification for focusing primary cancer education and prevention activities on four main cancer-causing factors. These are: (1) avoid tobacco, (2) avoid obesity/adopt healthy diets (3) learn the facts about viruses, infections and new vaccinations (4) be smart in the sun.

Advocacy and health education are fundamental especially in driving behavioural changes among young people where we can make a meaningful difference in reducing the burden of preventable cancers. The key to cancer control is prevention and the time to act is now.

Psychosocial Effects of Cancer

Cancer is a lonely journey. While advances in treatment have improved the physical experience, people living with cancer continue to suffer emotional pain and loss of self-esteem and self-confidence. These individuals often see their benefits, rights and social status snatched away overnight – a situation that often remains even after treatment.

http://webx.uicc.org/wcc/templates/wcc/pdf/Chap%203%20Childhood%20Cancer-web.pdf



                             Fundraising event organized at Boston!


    At the initiative and invitation of Mrs. Michele Marinthe Vlahos, Mrs. Olga Cridland was invited on the 1st of December 2006, in USA, in order to speak about the Romanian children with cancer, about the Association P.A.V.E.L. and about the need for help for these children.

    Mrs. Vlahos visited this September the Association P.A.V.E.L. and the oncology ward from the EMERGENCY CLINICAL HOSPITAL FOR CHILDREN  "Maria Sklodowska Curie (Budimex).
In this ward are treated per week about 40 children with different forms of cancer.
    Mrs. Vlahos was very touched by what she saw or spoke when she met the children, the parents, the nurses and the chief doctor and we appreciate very much her involvement in trying to help them!
    This hospital is one of the three hospitals from Bucharest, where there are oncological or hematological pediatrics wards, other two being: ONCOLOGIC INSTITUTE  « Prof. Dr. Alexandru Trestioreanu », where at the Pediatrics ward are treated weekly about 50 children /week and CLINICAL INSTITUTE FUNDENI, Hematology Pediatrics wards, I and II, where weekly are treated about 140 children /week. These children are from a large area of Romania.
    Few years ago, learning from Mrs. Valeria Ivan about Association P.A.V.E.L. and the need of help for the children with cancer, Mrs. Vlahos answered straight away, collecting an amount of money, with the help of the members of Richelieu Club and French Orchestra from Boston – money which were sent to our organization as support for our activities for the ill children.

    This year, with the kind help of Mrs. Michele Marinthe Vlahos, of the Richelieu Club Alain Briottet and all the Richelieu Clubs of New England, under the patronage of Professor Radu Florescu and with the kind help of the Romanian members of the Orthodox parishes, from Boston and its surroundings (one of the parishes involved, more, being "St. Cuv. Parascheva", Wakefield), it was organized a fundraising event at the HELLENIC COLLEGE, Brookline (near Boston), on the  1st of December 2006, were  Mrs. Cridland made her presentation.


    The purpose of this fundraising was to raise $10,000 in order to buy a second hand minivan to be used as an ambulance for transporting children from hospitals to the P.A.V.E.L. House or their homes and helping to return the deceased children to their homes.
    At this event was raised $3,000 and we decided to continue to raise money, further on.
    We would like to thank to all people involved in the event and special to Mrs. Michele Vlahos, for the sensitiviness, understanding and kindness shown towards the ill children and proved with this occasion!
    God bless them all!

 
   Participation at the Cancer United Campaign
Brussels, 19th of October 2006


" Dear Olga-Rodica Cridland
   
  Thank you very much for signing the Cancer United Call for Action. With your support we are hoping to improve the access to the best cancer care for all cancer patients across Europe.
  Your name and country will appear among the list of signatories available on our website.
  I would also like to remind you that you can find further information about the issues raised in the Call for Action on the website
www.cancerunited.org.
  Please feel free to contact me should you have any question about the Cancer United campaign and the Call for Action.
  Sincerely,

  Prof. John Smyth, Cancer United Chair, and Ingrid Kössler, Cancer United Co-Chair
  25 Oct 2006"

 
Fast Facts
Cancer United
1 August 2006

 Our vision:
  · Equal access to quality cancer care for all patients across Europe. 
 
 Our mission:
  · To have comprehenive national cancer plans  in all countries of the European Union through a Call for Action to the European Commission to develop a Europe-wide cancer strategy. 
  · To  gather  one  million  signatories  to  support  our  Call  for  Action  –  available  at: www.cancerunited.org
  · To ensure that cancer care reflects the  impact of cancer on a person’s life.
 
 Campaign milestones:
 
· The  Cancer  United  Campaign  will be  launched  in  Brussels  on  19  October  2006  followed  by national activities in every Member State of the European Union over the next 18 months. 
  · The  Cancer  United  Campaign  will  undertake  a  fact-finding  mission  alongs de  the  national activities.
  · The Cancer United campaign will return to Brussels  in Spring 2008 to present  its findings and the Call  for Action to the  three  main  EU  institutions:  the  European  Parliament,  European Commission and European Council of Ministers.
 
 More about the Cancer United Campaign:
  · The  Cancer  United  Campaign  is  being  driven  by  a  coalition  of  patients,  patient  groups, doctors, nurses, researchers, industry, policy makers and major  institutions  involved  in cancer research and care.
  · The  campaign  will  be  taken  to  each  member  state  of  the  EU  and  will  be  led  by  a  National President  in each country.

  · The Cancer United Campaign  is managed  by an Executive Board:
    - Prof. John Smyth, Professor of Medical Oncology at Edinb urgh University and President of the Federation of European Cancer Societies  is the Chair of the Executive Board.
  - Ingrid  Kössler,  President  of  the  Swedish  Breast  Cancer  Association  is  the  Co-Chair  of  the Executive Board. 
 
 · Other Executive Board Members of the Cancer United Coalition are:
  - Dr Matt  Aapro, Dean of the Multidisciplinary Oncology Institute, Genolier and Executive Director of the Internat onal Society for Geriatric Oncology (SIOG)
  - Prof Franco Cavall , Director, Oncology Institute of Southern Switzerland (IOSI)
  - Prof Alexander Eggermont, Immediate Past-President, European Organisation for Research and Treatment of Cancer (EORTC)
  - Tom Hudson, President, Europa Uomo
  - Catherine Steele, International Head Public Policy, Pharma Business, Roche
  - Prof M ke Stevens, CLIC Professor of Paediatric Oncology, University of Bristol, UK
  - Prof Thomas Tursz, Organisation of European Cancer Institutes (OECI)
  - Anita Waldmann, President, Myeloma Euronet
  - Dr Yvonne Wengstrom, President, European Oncology Nursing Society (EONS)
 
 · The Cancer United Campaign  is supported  by a grant from Roche.
 
 Why do we need the Cancer United Campaign?
  · Cancer  touches  every  family  in  Europe.  It  is  the  second  main  cause  of  death  after cardiovascular disease
   · Around  1.7  million  people  die  from  cancer  in  Europe  each  year  –  every  two  minutes  another six families will have
lost someone to cancer
  · Although  major  advances  have  been  made  in  cancer  treatment,  around  a  half  of  cancer patients still die of the disease
  · In  men,  the  most  commonly  diagnosed  cancer  is  lung  cancer  (19%);  in  women,  the  most commonly diagnosed cancer  is  breast cancer (27%)
  · Access to quality cancer care varies from country to country:  if, for example, you live  in Spain you are much more likely to have access to the newest therapies than  if you live  in the UK
  · In the EU25, the probabilities of surviving lung cancer 5 years after diagnosis are almost twice as high  in the country with the  best survival rate than  in the country with the worst



International Childhood Cancer Day - 2006


  

      With this occasion, the Association P.A.V.E.L.organized two events:

  -  Saturday, the 18th of February 2006, at 16 o' clock, the Theater "Ion Creanga", from Bucharest together with the Association P.A.V.E.L. offered a free theater performance "The Witch Meg' s Adventures" by David Wood, after Helen Nicoll and Jan Pienkowski.


  Claudia Revnic, Florina Luican, Ovidia-Manon Oprisan,                            Gabriel Coveseanu, Voicu Hetel
  Cornelia Pavlovici, Voicu Hetel, Marioara Sterian,
  Marcela Andrei 

  Artistic direction: Elliott Swift si Cornel Todea
    
         
                                                 

 MEDIA RELEASE


For immediate release: January 2006

Who: ICCCPO
What: International Childhood Cancer Day
Where: 65 countries around the world
When: 15th February 2006
Why: To raise awareness of children with cancer worldwide


 250 children die needlessly every day from cancer

Official statistics (IARC) estimate that 80% of children are diagnosed with cancer live in developing countries where the childhood cancer is often either not diagnosed or not treated appropriately. More than half of the children that do get diagnosed in developing countries will die of their disease.

Childhood cancer is highly treatable with early diagnosis and access to the best treatment. Some 75% now survive in developing countries. However, later diagnosis reduces to chances of recovery, and with no specialist treatment, the child will die.

ICCCPO estimates that up to 100,000 children die needlessly from cancer each year because they lack access to optimal treatment – that is 250 children every day, more than 10 every hour.

In 2006, ICCCPO is campaigning with SIOP and UICC to raise awareness of the need for early diagnosis of childhood cancer and access to a specialist child cancer unit for treatment, including palliative care. In developing countries it will bring hope to tens of thousands of children currently not properly treated. The earlier a child is diagnosed, the better the chance of successful treatment and recovery.

ICCCPO and SIOP have endorsed the “Signs of Cancer” poster for use in basic education for families, schools and local doctors.
  
For media information contact Anita Kleinesberger or Geoff Thaxter: secretariat@iccpo.org

Note to editors:

ICCCPO is the International Confederation of Childhood Cancer Parent Organisations, representing families of children with cancer worldwide. www.icccpo.org

SIOP is the International Society of Paediatric Oncology, representing the international medical profession in childhood cancer. www.siop.nl

UICC is the International Union Against Cancer, representing the global control of cancer. www.uicc.org

IARC is the International Agency for Research on Cancer. www.iarc.fr


Notes on childhood cancer:

Data on childhood cancer occurrence is largely unavailable. Based on the information available it is estimated (by IARC) that 160,000 new childhood cancers and 90,000 deaths occur each year.

Cancer affects around 100-150 children per million each year. Extending this rate to the world population of children would suggest there may be 225,000 cases per year.

ICCCPO estimates that based on incidence rate of childhood cancer and the number of children in the world, there are about 225,000 actual cases. ICCCPO also estimates that up to 100,000 of these children die needlessly because they lack access to optimal treatment available in developed countries.

75% of children with cancer survive at least 5 years when given access to optimal treatment.

“Signs of Cancer” details are available from the ICCCPO website.

Dates:

International Childhood Cancer Day is 15th February.
World Cancer Day is 4th February.


Because UICC have focused on childhood cancer in 2006, ICCCPO and SIOP are campaigning in 2006 between 4th and 15th February.


International Childhood Cancer Day


    Beginning with 2003, the day of 15th February will be consider the International Childhood Cancer      Day. 

   Events concerning this occasion may be run for up to a month around this date.
   The purpose of the International Childhood Cancer Day is to:

  • help educate the public about childhood cancer;
  • support local fund-raising by members of ICCCPO (the International Confederation of Childhood Cancer Parent Organizations);
  • provide international sponsorship of ICCCPO.


                   

     In 2002, the Childhood Cancer International Day  was celebrated at the National Operetta Theater, from Bucharest, having as extraordinary guest, Baroness Emma Nicholson (15 January 2002).

    LETTERS  recieved with this occasion from Her Majesty Queen Elisabeth II, The Queen of the United Kingdom, from Her Majesty Queen  Beatrix, The Queen of The Kingdom of The Netherlands and  from His Royal Highness Prince Charles, The Prince of Wales.


   PRESS RELEASES


Evenimentul Zilei, 12-13th January 2002
Opereta in ajutorul copiilor bolnavi

   Parintii copiilor bolnavi de cancer, reuniti in "Asociatia P.A.V.E.L." si artistii lirici de la Opereta au initiat un proiect in scop umanitar. Astazi, ora 11.00, la Teatrul National de Opereta are loc un spectacol in beneficiul acestor copii. In prezenta baroanei Emma Nicholson, cei mai cunoscuti solisti ai Teatrului de Opereta, printre care Daniela Vladescu, Eugenia Ilinca, Florin Georgescu etc vor interpreta arii si duete celebre din operete. In foaier vor fi expuse desene realizate de copiii bolnavi. Pentru ca acest spectacol sa-si atinga scopul - acela de binefacere - pretul unui bilet a fost stabilit la 200.000 de lei. (C.D.)
 
                                                
                                             Baroness Emma Nicholson visiting the Association P.A.V.E.L.

Romania Libera, 11th January 2002
Spectacol de binefacere pentru copiii bolnavi de cancer

   Sambata, la ora 11, la Teatrul National de Opereta "Ion Dacian", Asociatia P.A.V.E.L. impreuna cu institutia de cultura organizeaza un spectacol de binefacere cu ocazia Zilei Internationale a Copilului cu Cancer, care va avea loc pe data de 15 ianuarie 2002. "Farmecul Operetei" se va bucura de participarea unor prim-solisti, printre care Doina Scripcaru, Silvia Sohterus, Mioara Manea-Arvunescu, Gabriela Daha, Stefan Popov, Daniel Eufrosin etc. Danseaza Monica Strat si Iulian Radoi si acompaniaza orchestra Concertino sub conducerea violonistului Eugen Mirescu. Spectacolul se va bucura de prezenta baronesei Emma Nicholson, a unor numerosi oameni de afaceri, reprezentanti ai corpului diplomatic, ai Guvernului etc. Toate fondurile vor fi donate Asociatiei P.A.V.E.L., care este o organizatie umanitara, non profit si neguvernamentala a parintilor cu copii bolnavi de cancer, leucemie si anemiii grave. Scopul ei este de a oferi ajutor moral, material si legal familiilor cu copii bolnavi. Pretul biletului la spectacolul de maine este de 200.000 lei. In Romania, rata de vindecare a acestor copii bolnavi este de 20 %, in functie de specificul bolii. (Ioana Georgescu)
 

                      
                    Follow up of the campaign "Pretuieste viata"

     According to the "Accord of Co-operation" (10.09.2004)  and "Aditional Act" (09.03.2005) between the PRIME TIME WORLD BROADCAST  S.A.  company (the producer of "Surprize, surprize" show , which takes place on the Romanian television channel, TVR1) and the Association P.A.V.E.L., all the money, collected in the fund - raising (the Campaign "Pretuieste viata") - done for the developping of the Romanian medical system in order to realise the bone marrow transplant for the cancer patients - were transfered on the 06.04.2005, from the special (campaign) accounts of the Association P.A.V.E.L. (opened for this occasion) into the accounts of the three  bone marrow transplant units from Romania, from Bucharest, Timisoara and Targu Mures.

     Part of these money were collected directly in the accounts through donations from individuals and companies and others were collected by calling the numbers:  090 090 0001 (100,000 lei/call) and  090 090 0002  (200,000 lei/call), by the national telephone company ROMTELECOM.

    There were registered 12,278 calls of 200,000 lei and 30,999 calls of 100,000 lei , and from these money, ROMTELECOM transfered in our accounts the amount of 3,951,100,711 lei (meaning 71 %).
    On the 01.04.2005, into the Association P.A.V.E.L. campaign - account were totally 6,295,402,913 lei
(including the interest, too).

    On the 02.03.2005, between the Association P.A.V.E.L. and
the three  bone marrow transplant units from Bucharest, Timisoara and Targu Mures were signed Contracts, where it was mentioned that each unit will recieve 2,098,242,638 lei (which was done on 06.04.2005).
    
   
These units are: Clinica III - Compartimentul de Transplant Medular al Spitalului Clinic de Urgenta pentru Copii „Louis Turcanu”, Timisoara, Departamentul de Hemato-Oncologie si Transplant Medular al Institutului Clinic Fundeni, Bucuresti si Clinica de Hematologie si Transplant Medular al Spitalului Clinic Judetean de Urgenta, Targu Mures.

    In the name to all those who will benefit of a transplant of bone marrow, we thank from our heart to all the individuals, companies - who donated for this campaign, and to all volunteers and the organisers of the campaign!

    As the situation of these units and of the people who need a transplant of bone marrow is still very difficult, we pray you to continue to support them, donating into the accounts of the Association P.A.V.E.L. and of other similar organisations, which fight for people with cancer!

    Help also the children ill of cancer and leukemia who are under treatment in hospitals and need desperatly your support!


September 2004

   The Association P.A.V.E.L. has participated in a new fund-raising event in co-operation with the "Surprize, surprize" show company and with the extraordinary contribution of Mrs. Andreea Marin, which took place on the Romanian television channel, TVR1, on the 11th of September with.
  You may look at the site: http://www.surprize-surprize.ro/
  The fund - raising is done for the developping of the Romanian medical system, in order to realise the bone marrow transplant, for the cancer patients.
   We'd like to thank you all who will donate (see our "how can you help" page).





                                   
                               

                                   
                                        Olga Cridland and her son, Cosmin Halmagi, 11 September 2004


    For donation within our project in colaboration with "Surprize surprize" show, please use the following accounts, open at the bank BANC POST S.A., branch TITAN, sector 3, Bucharest, Romania:

     EURO:  RO91 BPOS 7100 3031 332E UR03
   USD:    RO65 BPOS 7100 3031 332U SD02
   ROL:    RO54 BPOS 7100 3031 332R OL02