P.A.V.E.L. HELPLINE for young
cancer patients: 0800 800 421
Childhood Cancer Day
15 February 2008
Beginning with 2003, the day of 15th February is considered the
International Childhood Cancer Day.
Events concerning this occasion may be run for up to a month around
purpose of the International Childhood Cancer Day is to:
* help educate the public about childhood cancer;
* support local fund-raising by members of ICCCPO (the International
Confederation of Childhood Cancer Parent Organizations);
* provide international sponsorship of ICCCPO.
Childhood Cancer Day is held on the 15th February each year.
- Fundraising and
media events held throughout February.
The purpose of the
International Childhood Cancer Day (ICCD) is to:
- Educate the
general public about childhood cancer
- To raise money
through fundraising events
- To promote the
work of local parent organisations
At the end of the year
2005, in Romania there were registered 354,572 cancer
patients, 4,467 being children with age bewteen 0 and 14
years old. There are 55,000 new cancer patients diagnosted each year
(incidence rate is 252 people with cancer at 100,000 people), from whom
165 are under 14 years old.
In Romania, the average rate of recovery of these children is about 30
to 60%, in function of the specific of disease.
P.A.V.E.L. Association is the single parents' organization from
Romania, whose children have cancer and one of few cancer patients'
organization country, who work for cancer patients.
Childhood cancer is rare, but highly treatable
Each year, more than 160,000 children are diagnosed with cancer and
approximately 90,000 die of cancer.
Childhood cancer is relatively rare
In the 1990s, age-standardised incidence rates were 140 per million for
European children (0–14 years); ASR rates for the 52 countries in the
1998 IARC study on the international incidence of childhood cancer have
a rough average of 120 per million.
cancer responds well to prompt and effective treatment
In the USA, childhood cancer was almost uniformly fatal before the
mid-1960s, but survival rates improved to 55% in the 1970s and better
than 75% in the 1990s.
In Europe, 5-year survival rates improved from 44% for children
diagnosed in the 1970s to 64% for children diagnosed in the 1980s and
74% for children diagnosed in the 1990s.
Improved survival rates are largely due to better treatment and
improved quality of care. Chemotherapy was introduced for the treatment
of childhood leukaemia in the 1940s and has been incorporated into
treatment regimes that previously relied on surgery or radiotherapy for
other common childhood cancers. In the USA, seven out of ten children
now receive their care in special paediatric cancer treatment centres.
But not in the developing world…
80% of children with cancer live in developing countries. They are
often diagnosed too late or not diagnosed at all.
Without access to life-saving treatment, more than one in two of these
children diagnosed with cancer will die.
Treating childhood cancer doesn't have to be expensive. By developing
treatment regimes that take account of a country's medical facilities
and providing proper training and advice to local doctors, we can make
great progress on relatively limited funds.
The international community needs to recognise the plight of children
with cancer as a priority.
HIV/AIDS remains a critical priority for the health of children in
sub-Saharan Africa, but cancer is emerging as a major cause of
childhood death in Asia, Central and South America, northwest Africa
and the Middle East, where fewer children are now dying from
preventable infectious diseases.
A coordinated strategy by the global cancer control community – one
that combines innovative science and sound public health policies – can
save a large proportion of the 90,000 young lives lost every year.
"Annual Report to the Nation on the Status of Cancer, 1975-2001, with a
Special Feature Regarding Survival", Cancer, vol 101, no 1, July 1,
Global Action Against Cancer (Geneva: UICC/WHO, updated edition 2005).
Ribeiro R.C. & Pui C-H. (2005), "Saving the Children - Improving
Childhood Cancer Treatment in Developing Countries", New England
Journal of Medicine, 352; 21: 2158-2160.
Steliarova-Foucher E., Stiller C. et al. (2004), "Geographical patterns
and time trends of cancer incidence and survival among children and
adolescents in Europe since the 1970s (the ACCIS project): an
epidemiological study", The Lancet, 364: 2097-105.
Tanneberger S., Cavalli F., Pannuti F., eds., Cancer in Developing
Countries: The Great Challenge for Oncology in the 21st Century
(Munich: Zuckschwerdt, 2004).
Promoting a smoke-free
environment for children
In the first global
initiative of its kind, the International Union Against Cancer (UICC)
and cancer-fighting organizations in every region will lead a year-long
effort to promote smoke-free environments for children. "I love my
smoke-free childhood" will launch on World Cancer Day, 4 February, with
these messages for parents:
Avoid smoking at home or
in a car
Caution children to stay
away from second-hand smoke and keep children away from places that
Teach children there is
no safe level of second-hand smoke
Do not smoke while
pregnant or in the vicinity of someone who is pregnant
Use a smoke-free
If you are a smoker, ask
your doctor what you can do to stop
Become a role model for
your child - do not smoke
Protecting our children
from second-hand smoke
To back these messages,
UICC is publishing a 40-page expert report, "Protecting our children
from second-hand smoke".
This expert report sets
out the health consequences to children of exposure to environmental
tobacco smoke and makes detailed recommendations on safeguarding
children in homes and cars, schools, childcare facilities, and other
public places. Authors include Dr Jonathan Samet, senior scientific
editor of the 2004 and 2006 US Surgeon General's reports on smoking and
health. Copies available on requestThis e-mail address is being
children, tomorrow's world
"I love my smoke-free
childhood" is the first full-year initiative in "Today's children,
tomorrow's world", a five-year global focus on children in UICC's World
Cancer Campaign, launched on World Cancer Day 2007.
The campaign presents
simple steps parents can share with children to prevent cancer later in
life: eating a balanced diet, learning about vaccines for virus-related
liver and cervical cancers and avoiding over-exposure to the sun.
"Forty percent of cancers
are preventable through healthy habits. The first step toward
prevention is education, starting with parents and children. Every
success story means fewer lives lost," says Isabel Mortara, UICC
lead the list of preventable deaths and hundreds of thousands of people
who have never smoked die each year from diseases caused by second-hand
smoke. That's why this initiative is so important."
Tobacco causes one in
five of all cancer cases worldwide and one in three in high-income
countries. Tobacco killed more than five million people in 2005. If
current trends continue, by 2030 tobacco will kill as many as 8.3
million people each year.
In addition to targeting
individuals, the World Cancer Campaign encourages decision-makers to
put cancer on the public agenda. A growing number of countries have
passed 100% smoke-free legislation, banning smoking in all enclosed
public places without exception.
"Countries with 100%
smoke-free laws should be commended for their legacy to healthier
families. In these nations the percentage of children exposed to
second-hand smoke has decreased over time," says Dr Franco Cavalli,
UICC president. "While this trend is encouraging, this approach alone
will not protect children from second-hand smoke. That's why educating
parents is so crucial."
On World Cancer Day, the
UICC is launching a design competition for a logo signalling a
"smoke-free" home or car. The competition is open to individuals, UICC
members and creative agencies. The winning artwork will be announced on
5 May and awarded US $5,000. For further details contact JJ Divino,
World Cancer Campaign coordinatorThis e-mail address is being protected
control and cancer prevention:
Resources for reporters
The International Union
Against Cancer: Founded in 1933, the International Union Against Cancer
(UICC) is the world's only truly global consortium of cancer-fighting
organizations, with almost 300 members spanning Africa, the Americas,
Asia-Pacific, Europe, and the Middle East. Located in Geneva,
Switzerland, UICC has members in more than 90 countries.
World Cancer Congress
2008: The World Cancer Congress offers reporters access to the world's
leaders in cancer control. The next Congress will convene in Geneva,
27-31 August. The meeting offers new research on topics such as tobacco
control and cervical cancer vaccination, as well as ongoing
evidence-based solutions to cancer control in every region.
GLOBALink: UICC's tobacco
control network, GLOBALink, offers an in-depth database of resources
for reporters and the tobacco-control community. GLOBALink provides
open access to an RSS aggregating tobacco news from around the world.
ORPHANET is a
database dedicated to information on rare diseases and orphan drugs.
Access to this database is free of charge.
ORPHANET aims to
improve management and treatment of genetic, auto-immune or infectious
rare diseases, rare cancers, or not yet classified rare diseases.
services adapted to the needs of patients and their families, health
professionals and researchers, support groups and industry.
ORPHANET created an
European portal (www.orpha.net), which
gives free access for information, to any person. Romania is
represented in this project from
2004 by the ORPHANET
- ROMANIA team (from UMF, Iasi), leaded by Prof. Dr. Mircea Covic.
Description of services
Search by disease
information about a rare disease, the specialized outpatient clinics,
clinical laboratories, research projects, patients support groups and
other interesting web sites in the world, search by disease name. Data
collection is in progress in 20 European countries.
Search by clinical sign
Orphanet provides a
facility to retrieve diseases by signs and symptoms. It is based on an
algorithm, which defines a diagnosis by a set of phenotypic components
all having the same weight, using a fixed vocabulary. This tool aims at
assisting physicians in their diagnosis making approach
For each disease,
all the types of outpatient clinics which are relevant for the
diagnosis or the management of the disease, are mentioned. The clinics
may be located in public or private institutions, depending on the
country. As they are numerous and as they are not difficult to
identify, the list is not provided.
In addition some
highly specialized clinics are mentioned. These clinics provide an
expert service for one disease or a group of diseases. The way they are
selected is described in the section on procedures. By no mean, these
clinics are the only places where patients can be adequately diagnosed
and treated. They are places where to refer patients when the
professional in charge of a patient feel that advice from an expert is
projects which are listed are those which are currently funded by
public agencies or by charities after a competitive and independent
registries with complete ascertainment of cases, and collections of
cases which are usually hospital-based are listed. Only registries
which are funded by public agencies or by well-established charities,
The clinical tests
which are mentioned are those which are disease specific and which
require special expertise.
In some countries,
certain tests can only be performed by laboratories or physicians which
have a licensing or a certification for that activity. It only applies
to a limited number of activities in a limited number of countries.
All the patients
support groups which are listed are those which are relevant for the
patient and the patient's family. Some support groups are
disease-specific, some others are handicap- specific.
This is a list of
all the laboratories and departments which are specialized in one or
several rare diseases. It allows you to find their address if you know
their name or their field of activity by location.
All the drugs which
are mentioned are those which are either orphan drugs or very specific
drugs used to treat rare conditions.
This is the list of
all the professionals whose activity is mentioned in Orphanet.
See also: http://ec.europa.eu/health/ph_threats/non_com/rare_diseases_en.htm
Association website has been assigned the SECOND PRIZE
at the 2007
Cancer on the Internet Award and Mention of Honour competition!
The 2007 Cancer on the Internet Award and Mention of Honour will be
awarded on 23 September, during the ESO Cancer on the Internet
Observatory, with the Patient Forum during ECCO 14, from Barcelona,
Award winners will be invited to attend the Observatory and will
receive their prize during this event.
Dr. Vinod Joshi (2006 1st prize winner) will present the prize to the
The Cancer on the Internet Award and Mention of Honour is an original
initiative of the European School of Oncology that is supported by the
School’s private donors. The organisation and promotion of the
Award are made possible through an unrestricted educational grant
provided by Novartis
Oncology, supporting member of the ESO programme Sharing
Progress in Cancer Care.
pursuant to Rule 116
of the Rules of Procedure
by Antonios Trakatellis, Françoise
Grossetête, Karin Jöns, Philippe Busquin and Adamos Adamou
on the need for a comprehensive strategy to control cancer
Lapse date: 27.9.2007
Written declaration on the need
for a comprehensive strategy to control cancer
The European Parliament,
– having regard to Rule 116 of its Rules of Procedure,
A. whereas, in accordance with the Treaties, the
Community is called upon to play an active role in the field of health,
whilst complying with the principle of subsidiarity,
B. whereas cancer remains the leading cause of death
C. whereas today we know that one-third of all
cancers are preventable and that one-third can be detected early, thus
leading to successful treatment,
1. Believes that if cancer is addressed by means of a
comprehensive strategy it will soon no longer be the leading cause of
death in Europe;
2. Calls on the Council and Commission to formulate a
comprehensive strategy addressing the four basic cancer control factors:
b. early detection
c. diagnosis, treatment and follow-up
d. palliative care;
3. Calls on the Commission to review the relevant
Community legislation and measures, upgrading and modifying them in
keeping with new scientific advances;
4. Calls on the Commission to:
- encourage research and innovation in the
area of primary prevention and early detection of cancer
- promote relevant information
campaigns for the general public and for all healthcare providers
- ensure that Community
legislation contains incentives for industry and researchers alike in
order to secure ongoing research and guarantee new generations of
medicines and new treatments to combat and control cancer
- secure through networks the
dissemination of best practices in order to ensure that citizens have
access to the best available treatment;
5. Instructs its President to forward this
declaration, together with the names of the signatories, to the Council
and the Commission.
reduce cancer occurrence should not be one which could lead to an
increased risk of other diseases. The recommendations which comprise
the revised European Code Against Cancer should, if followed, also lead
to improvements in other aspects of general health. It is also
important to recognise from the outset that each individual has choices
to make about their lifestyle some of which could lead to a reduction
in their risk of developing cancer. These choices, and the rationale
underlying their recommendation, are presented below.
European Code Against
Certain cancers may be avoided and general
health improved if you adopt a healthier lifestyle:
- Do not smoke;
if you smoke, stop doing so. If you fail to stop, do not smoke in the
presence of non-smokers
- Avoid Obesity
- Undertake some
brisk, physical activity every day
- Increase your daily
intake and variety of vegetables and fruits: eat at least five
servings daily. Limit
your intake of foods containing fats from animal sources
- If you drink
alcohol, whether beer, wine or spirits, moderate your consumption
to two drinks per day if you are a man and one drink per day if you are
- Care must be taken
to avoid excessive sun exposure. It is specifically important to
protect children and adolescents.
- For individuals who have a tendency to burn in the sun
active protective measures must be taken throughout
strictly regulations aimed at preventing any
exposure to known cancercausing substances. Follow all health
and safety instructions on substances which may cause cancer. Follow
advice of national radiation protection
There are public health programmes that
could prevent cancers developing or increase the probability that a
cancer may be cured:
- Women from 25 years of
age should participate in cervical screening.This
should be within programmes with quality control procedures in
compliance with European Guidelines for Quality Assurance in Cervical
- Women from 50 years of
age should participate in breast screening.
This should be within programmes with quality control procedures in
compliance with European Union Guidelines for Quality Assurance in
- Men and women from 50
age should participate in colorectal screening. This
should be within programmes with built-in quality assurance
Participate in vaccination
programmes against Hepatitis B Virus infection
was supported by the Europe Against Cancer programme of the European
FOR FAMILY CARERS
H A N D I C A P COFACE, Proposal
The European Charter for
family carers is based on the major International Conventions already
drafted or in the process of being developed (under the auspices of the
United Nations, Council of Europe, European Union, European Disability
Forum – EDF) to deal directly with the quality of life, dignity, rights
and full citizenship of persons with disabilities and their families.
It implements the “Assistance to Family
Carers” project carried out by some member organisations of
COFACE-Handicap between 2005 and 2006.
The Charter is designed as a reference tool
to be proposed to various organisations representing persons with
disabilities and complex dependency needs and their families within the
European Union, as well as to the Union’s Institutions.
This Charter contributes to reconcile
family life and working life by allowing a free and informed choice of
carer, in accordance with the goals of the Lisbon strategy.
1- Definition of family
A family carer is “a non-professional
person who provides primary assistance with activities in daily life,
either in part or in whole, towards a dependent person and his/her
immediate circle. This regular care may be provided on a permanent or
nonpermanent basis and may assume various forms, in particular:
nursing, care, assistance in education and social life, administrative
formalities, co-ordination, permanent vigilance, psychological support,
communication, domestic activities, etc.”
2- Choice of family
Persons with disabilities and complex
dependency needs should at all times have the ability to choose their
non-professional carer from among members of their family or immediate
circles. If these persons are unable to express their choice,
every endeavour must be made so that their
wishes are respected.
Reciprocally, family carers must have the
option of fulfilling their care-giving role on a full or part-time
basis to be able to reconcile it with their own work activities. Such
choice must be free, informed and open to re-assessment at all times.
3- National solidarity
The fact that persons with disabilities and
complex dependency needs may choose their own non-professional carers,
and the effective solidarities within the family, in no way release the
national and local public authorities from their respective
obligations towards those receiving and
those providing care. Furthermore, such care provision should meet
official recognition in terms of social rights and all kinds of social
Care thus provided could also be subject to
legal financial recognition.
4- Family solidarity
Generally speaking, families are one of the
best contexts in which persons with disabilities and complex dependency
needs are able to fulfil their lives.
Solidarity within families should be
complementary to and in keeping with Public Solidarity.
5- The place of the
family carer within the health system
The place of the family carer should be
recognised and as such taken into consideration in all health and
social protection policies.
Such social recognition should “formalise”
the role of family carers.
Family carers are entitled to care
facilities and various networks providing moral and psychological
support to which they may turn when in need.
6- Official status of
the family carer
As part of their caring role, family carers should benefit from the
social rights and resources required to provide assistance to persons
with disabilities and complex dependency needs in all daily activities
and social life.
Family carers have the right to enjoy equal treatment
in terms of:
labour and employment: working time
arrangements, holidays, return to work support, preservation of health
and social protection schemes;
universal access: transport, housing,
culture, built environment, communication, etc., through financial
retirement: through official recognition
of their status as carers;
official recognition of prior experience
in their caring role.
7- Quality of life
As regards quality of life, both the person
receiving care and his/her carer are interdependent. It is therefore
appropriate to develop all preventive policies (illness, weariness,
excess work load, exhaustion, etc.) enabling the family carer to fully
meet the person’s needs.
Both the carer and the person receiving
care should benefit from the support of approved and quality local
facilities and services.
8- Right to respite
This is a fundamental necessity to be met
in terms of support, occasional and/or emergency assistance,
substitution services and/ or top-quality temporary care centres during
various periods of time depending on needs (holiday, rest, health, etc.)
Family carers should be informed about
their rights and duties.
They should have access to all information
that will help them fulfil their role as carers.
They should also have access to all special
training programmes aimed at improving the quality of their care giving.
A training system should be set up by
public authorities in full consultation with the representative bodies.
Assessment should be on-going, involving
both the person receiving care and the family carer as well as the
- Assessment of both the person
assisted and carer’s needs.
of the services rendered at regular intervals and/or on demand: public
authorities should ensure that quality care is properly implemented and
formulate any necessary recommendations.
The person receiving care and the family
carer are the best placed to determine their needs and how to fulfil
them. It is imperative that they either participate or be represented
by a person of their choice in the assessment process.
COFACE-Handicap – 17 rue de Londres –
New radiation therapy treatment
A new radiation therapy treatment developed by the University of
Helsinki could offer hope to the thousands of patients a ro und the
world suffering f ro m head-and-neck cancers.
In their Phase I/II study, researchers at the Finnish university found
that locally recurring head-and-neck cancers responded positively to Bo
ro n Neut ro n Capture Therapy (BNCT).
An experimental form of targeted radiation treatment for cancer, BNCT
involves first infusing a bo ro n-containing compound (bo ro
nophenylalanine) into a peripheral vein until it accumulates in the
cancer tissue. The cancer is then subsequently irradiated with neut ro
ns obtained f ro m a nuclear reactor, which causes the bo ro n atoms to
split within the cance ro us tissue as a result of the bo ro n neut ro
n capture reaction. The resulting smaller particles cause a large
radiation effect within the tumour tissue, which dest ro ys the cancer
'The technique allows targeting of a high dosage of radiation to the
tumour while allowing sparing of the adjacent normal tissues f ro m the
highest doses of radiation,' reads a statement f ro m the University of
Helsinki . 'Bo ro n-mediated targeting of radiation allows treatment of
patients who can no longer be treated with conventional radiation
The novel therapy is administered as a single one-day treatment that
may be repeated if necessary.
Reporting the results of their clinical trials in the International
Journal of Radiation Oncology, Biology & Physics, the researchers
believe their findings to be clinically significant as they open up a
new field for BNCT. The technique has thus far only been used for the
treatment of some brain tumours.
The trials involved 12 patients diagnosed with head-and-neck cancers
which had recurred locally after surgery and conventional radiation
therapy. Ten out of the 12 patients had substantial tumour shrinkage
following BNCT, and in seven cases the scientists found that the tumour
had disappeared completely. As for the adverse effects of the
treatment, they are reported as moderate and resembling those of
conventional radiation therapy.
The sponsors, Boneca Corporation, have decided to expand the study, and
up to 30 subjects will now be allowed to enter the study p ro tocol.
This will be in addition to other phase I and II clinical trials
evaluating BNCT in the treatment of primary glioblastoma (a highly
malignant brain tumour) and anaplastic ast ro cytomas (a type of brain
tumour) that have recurred after conventional radiation therapy has
'Our plan is to investigate BNCT in the treatment of cancers located
elsewhere in the body that cannot be effectively managed by any known
treatment,' says P ro fessor Heikki Joensuu.
'The current treatment is a result of a long period of research, a p ro
of of academic expertise, and a model for effective collaboration
between the Helsinki University Central Hospital, the University of
Helsinki, VTT Technical Research Centre of Finland, and the company,'
says Boneca Corporation' s Managing Director, Markku Pohjola.
So far, over 100 cancer patients have received BNCT at the Boneca
Corporation' s facilities.
For further information, please visit:
COST is one of the oldest and largest network structures for scientist and
approx. 30 000 scientists are co-operating within the frame of COST.
COST supports the co-operation of Scientist Although it does not
provide funding for research activities it will fund the co-operation
efforts of scientific groups across Europe (mainly traveling costs to
meetings, workshop/conference organization costs, dissemination costs,
short scientific exchanges of researchers and other instruments) .
COST is "bottom up" that means it has no specific targeted research
activities and any scientific technical area can be supported by COST.
COST is multidisciplinary and supports the widest range of
COST is international and enables also the participation from
laboratories outside the European members.
How can I join COST?
Depending on your own position and that of the Action (for details
visit the COST website and look for the relevant Action details) there
are series of different forms of co-operation.
1. If your laboratory or institution is in a COST member country (this
has nothing to do with your own nationality) you can join the Action
1.1. Member of the Management Committee of an Action in case your
country has not yet nominated 2 scientists but is already signatory of
1.2. Member of the Management Committee if your country is not yet
signatory of the Action. In that case your country has first to sign
its participation in the relevant Action. (Note: If your country wishes
to become member 12 months after the approval of the Action the
approval of the Management Committee of the Action is required)
1.3. Member of a working group of an Action
1.4. Invited expert to specific events of an Action (Meetings of the
MC, WG, workshop participation etc.)
FORMALITIES REQUIRED - What you have to do:
Contact your COST National Coordinator (CNC) who can officially
nominate you as representative of your country to the MC committee. It
would be recommended that you also contact the chair of the Action
about your interest.
Contact your COST National Coordinator (CNC) who can launch the
participation of your country in the relevant Action. He will analyze
whether the national funding for the Actions activity is there. The CNC
can then launch the official participation of your country in the
relevant COST Action and he can officially nominate you as
representative of your country to the MC committee. In case of an
established COST Action (more than 12 months after CSO there is also
the agreement of the MC committee required. In any case it would be
recommended that you contact the chair of the Action about your
Contact the chair of the Action (directly or via a colleague from the
Action or via the COST Office) and obtain the invitation to participate
in the suitable COST working group.
Contact the chair of the Action (directly or via a colleague from the
Action or via the COST Office) and obtain the invitation to participate
in a specific event of the Action.
2. If your Institution is in a non-COST member state there is the
2.1. to participate from an Institution with the status of "non-COST
participating Institution" if this was recognized by the Committee of
Senior Officals (CSO) as in the mutual benefit.This allows to
participate in the MC and WG meetings although without voting right The
participants from non-COST countries are normally not eligible for
reimbursement of travel expenses although for specific countries
exceptions may be possible.
2.2. To participate as invited expert to specific events of an Action
(Meetings of the MC, WG, workshop participation etc.)
esf.org/index. php?id=9# faq
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Official Opening of the P.A.V.E.L. Resources and Services Center
the framework of the Project "Building
the Future for the Children of
Romania", financed by The International Union Against Cancer
www.uicc.org) and by the Pharmaceutical
Company Sanofi Aventis, France - "My Child Matters"
had place on June 5th, 2007, 12:30 p.m.
at the Oncologic Institute "Prof. Dr. Alex. Trestioreanu" (ground
floor, room 116, next to the Chapel)
You may read more at the page: Programs
The Conference of INGOs of the
Council of Europe
on 30 January 2007, Council of Europe, Palais de
President : Annelise OESCHGER
OING Conf (2007) OJ 1 rev
Speaking in front
of the representatives of INGOs
1. Opening of the meeting by the President (Annelise OESCHGER)
2. Adoption of the Agenda [OING Conf (2007) OJ1 ]
3. Approval of the report of the meeting of 6 October 2006
[OING Conf (2006) CR2]
4. Exchange of views with the Secretary General of the
Council of Europe, Terry DAVIS (5pm)
5. Intervention by the Chairman of the Ministers’ Deputies,
Ambassador Guido BELLATTI CECCOLI, Permanent Representative of San
Marino to the Council of Europe (3pm)
6. 2006 Activity Report of the INGO Liaison Committee:
debate and adoption
Jean-Marie HEYDT (Vice-President of the Liaison Committee)
- One example: Forum on Intercultural Dialogue (Strasbourg, 23-25
November 2006), Bastian KUNTZEL (Delegate of the Liaison Committee to
the Advisory Council on Youth), Brigitte LUDMANN (Youth Express
7. 2006 Activity Report of the Groupings: debate and
Jean-Claude GONON (General Rapporteur of the Liaison Committee)
- One example: Act for everyone’s health – follow-up to the Seminar on
the participation of Romanian civil society in the European
construction process (*Bucharest,
4-6 May 2006), Paul DE RAEVE (President of the Health Grouping, Olga CRIDLAND (PAVEL Association)
8. Outcome and follow-up to the Seminar on the
Participatory Element of Democracy (Strasbourg, 4-5 December)
- Report by Loïc TRIBOT LA SPIERE (General Rapporteur of the
- Debate on the drafting of a code of ethics by the Conference of INGOs
9. Discussion and adoption of a resolution on the situation
of the civil society in Belarus
10. Examination of the draft recommandation of the
Committee of Ministers on the legal status of the NGOs, Cyril RITCHIE
(President of the Civil Society and Democracy in Europe Grouping)
11. The Expert Council of the INGO Conference for the
monitoring of national NGO legislation: debate on its mandate, Marc
LEYENBERGER (chargé de mission)
12. Mobilisation of the INGOs, Jenny SCHULER, André
ZAWADZKI , Rapporteurs of the Liaison Committee) and presentation of
the INGO database Jane CROZIER (Division of NGOs and Civil Society),
Christophe DUFOUR (consultant)
13. Presentation and discussion of the revised Rules of
Procedure of the Conference of INGOs and of the Liaison Committee and
the Thematic Groupings, Claude-Laurent GENTY (Honorary President of the
14. Verification and Dispute Committee - election of a
member (Article 14 of the Rules of Procedure of the Conference of INGOS
16. Date of the next meeting of the Conference of INGOs of the
Council of Europe (26 June 2007)
The International Childhood Day,
celebrated in hospitals
1 June 2007
A Happy Easter to
We thank to
Foundation Kinderen in Nood, to the Dutch school children, to other
donors and volunteers, who through their gifts and help, offered a joy
to the ill children, at this Easter!
World Cancer Campaign 2007 - 2012
"Today's children, tomorrow's world"
Together, those two words strike fear in the hearts of parents
But add a third word - prevention - and the message becomes one of
hope, health and life stretching from youth through adulthood.
Prevention is the focus of "Today's children, tomorrow's world", the
second phase of the World Cancer Campaign that will launch on World
Cancer Day, 4 February 2007.
At the heart of the campaign will be messages to parents, politicians
and health-care professionals. UICC and its member organizations will
share information about simple lifestyle changes and cutting-edge
vaccines that can prevent many forms of cancer.
"This campaign is about preventing cancer now and it is about the
future," says Franco Cavalli. "By teaching today's children, we can
give them a better, healthier world tomorrow."
Many people around the world believe that cancer is fate - just
something that happens to them if they are unlucky. They believe that
they have no control over their chances of developing a cancer.
In fact, more than one-third of all cancer cases worldwide – almost
four million cases each year – can be prevented if we act on what we
already know and apply that knowledge in our daily behaviour. Tobacco
use, diet, nutrition and exercise, sun safety and vaccination against
cancer-causing viruses all play a role in influencing cancer risk.
Simple changes in lifestyle can be taken to reduce cancer risk.
The aim of the “Today’s children, tomorrow’s world” campaign is to
scale up awareness of what we can do to prevent cancer and to change
people’s behaviour in that light.
Healthy habits established early in life have a significant impact in
later years. Behaviour is already formed before adolescence. The
environment in which children grow up – at home, in school, and in the
community – powerfully influences their behaviour later on, whether
this regards tobacco use and exposure to second-hand smoke, diet and
physical activity, or smart behaviour in the sun. Policymakers’
decisions about cancer vaccination at an early age determine how far
children and young people will be protected against cancers of the
liver or cervix.
For all these reasons, the “Today’s children, tomorrow’s world”
campaign will focus on the young.
Parents have a key role in influencing healthy habits in their
children. We need to help parents to understand the long-terms benefits
of a healthy lifestyle and to engage them as partners in cancer
prevention activities that start early in life.
From a prevention perspective, there is strong justification for
focusing the campaign on four main cancer-causing factors: (1) tobacco
and tobacco-free environments, (2) diet, alcohol and exercise, (3)
preventing infections that may cause cancer, and (4) being sun smart.
The campaign message globally consists of four key precepts:
- provide a
smoke-free environment for children ("no smoking in homes")
- encourage an
energy-balanced lifestyle (regular physical activity and low-fat diet,
- learn the facts
about vaccinations (HBV & HPV)
- teach your
children to be sun-smart
In the course of this campaign, UICC, its member organizations and its
partners throughout the world will engage in awareness-building,
information-sharing, educational activities and community mobilization.
"My Child Matters"
In 2005, the International Union Against Cancer (UICC) launched its
World Cancer Campaign, with an initial focus on childhood cancer under
the theme "My child matters". Over the coming years, the campaign will
address many aspects of the fight against cancer.
There is an urgent need to scale up awareness of the fight against
cancer. Information, education and communication, especially with
respect to prevention, early detection, diagnosis and treatment, need
strategic focus in order to bring about socio-behavioural changes. In
recent years, the fight against cancer has taken a back seat to other
public health priorities such as HIV/AIDS, tuberculosis and malaria.
Each year, 7 million people die of cancer and 11 million new cases are
diagnosed. Cancer claims twice as many lives worldwide as AIDS. In
fact, more than 12% of all deaths every year are caused by cancer.
That’s more than AIDS, tuberculosis, and malaria put together.
The UICC World Cancer Campaign is a response to the Charter of Paris adopted during
the 2000 World Summit Against Cancer for the New Millennium. This calls
for “an invincible alliance – between researchers, healthcare
professionals, patients, governments, industry and media – to fight
cancer and its greatest allies, which are fear, ignorance and
No other international organisation has built on this momentum to
coordinate activities and organise related annual events at the global
level. Therefore, UICC, through its member organisations and partners,
has launched the World Cancer Campaign, including the annual
commemoration of World Cancer Day on 4 February. Specific campaigns
will be planned along selected themes to highlight awareness of the
cancer burden in participating countries and gather funds for cancer
UICC and The Lancet Oncology announce €600,000 initiative to tackle
cancer in children in the developing world.
12 innovative projects in Indonesia,
Romania, Kenya, Peru, Bolivia, and Mali - countries targeted by
the International Union Against Cancer (UICC) - will receive up to
€50,000 each to improve cancer care for children, announce The Lancet
Oncology and the UICC today, in one of the largest initiatives to
tackle childhood cancer in resource-poor settings
London, 3 January 2007 - 12 innovative projects in Indonesia, Romania,
Kenya, Peru, Bolivia, and Mali - countries targeted by the
International Union Against Cancer (UICC) - will receive up to €50,000
each to improve cancer care for children, announce The Lancet Oncology
and the UICC today, in one of the largest initiatives to tackle
childhood cancer in resource-poor settings.
matters" initiative funds 12 new projects
12 January 2006
At its meeting on 13-14 December 2006, the "My child matters" advisory
steering committee agreed to fund 12 new projects in six low- and
middle-income countries. The countries are Bolivia, Indonesia, Kenya, Mali, Peru and
Romania, and the projects selected are listed below.
"My child matters" is a UICC partnership with the Sanofi-Aventis
department of humanitarian sponsorship.
1. Improving the diagnostic services for children with cancer - Doina
Mihaila, St Mary's Emergency Children's Hospital, Iasi.
2. Assessing the childhood cancer burden in Romania and ways of
improving it - Adela Ratiu, Institute of Oncology "Prof Dr Al
3. Building a
future for Romanian children - Olga-Rodica
Cridland, Association PAVEL, Bucharest.
An article on the 12 projects selected will appear in the Lancet
Oncology in January 2007.
The advisory steering committee also agreed to continue funding in 2007
for the 14 pilot projects in 10 resource-constrained countries -
Bangladesh, Egypt, Honduras, Morocco, Philippines, Senegal, Tanzania,
Ukraine, Vietnam and Venezuela - that completed their first year of
operation in 2006.
WHAT IS CANCER?
Cancer is a generic term for a group of more than 100 diseases that can
affect any part of the body. Other terms used are malignant tumours and
neoplasms. One defining feature of cancer is the rapid creation of
abnormal cells which grow beyond their usual boundaries, and which can
invade adjoining parts of the body and spread to other organs, a
process referred to as metastasis. Metastases are the major cause of
death from cancer.
FACTS ABOUT CANCER
Cancer is a leading cause of death worldwide. From a total of 58
million deaths worldwide in 2005, cancer accounts for 7.6 million (or
13%) of all deaths. The main types of cancer leading to overall cancer
lung (1.3 million deaths/year);
Stomach (almost 1 million deaths/year);
Liver (662,000 deaths/year);
Colon (655,000 deaths/year) and
Breast (502,000 deaths/year).
More than 70% of all cancer deaths in 2005 occurred in low and middle
income countries. Deaths from cancer in the world are projected to
continue rising, with an estimated 9 million people dying from cancer
in 2015 and 11.4 million dying in 2030.
The most frequent cancer types world wide are:
Among men (in order of number of global deaths): lung, stomach, liver,
colorectal, oesophagus and prostate.
Among women (in order of number of global deaths): breast, lung,
stomach, colorectal and cervical.
QUICK CANCER FACTS
40% of cancer can be prevented (by a healthy diet, physical activity
and not using tobacco).
Tobacco use is the single largest preventable cause of cancer in the
world. Tobacco use causes cancer of the lung, throat, mouth, pancreas,
bladder, stomach, liver, kidney and other types; Environmental tobacco
smoke (passive smoking) causes lung cancer.
One-fifth of cancers worldwide are due to chronic infections, mainly
from hepatitis B viruses HBV (causing liver), human papilloma viruses
HPV (causing cervix), Helicobacter pylori (causing stomach),
schistosomes (causing bladder), the liver fluke (bile duct) and human
immunodeficiency virus HIV (Kaposi sarcoma and lymphomas).
WHAT CAUSES CANCER?
Cancer occurs because of changes of the genes responsible for cell
growth and repair. These changes are the result of the interaction
between genetic host factors and external agents which can be
physical carcinogens such as ultraviolet (UV) and ionizing radiation
chemical carcinogens such a asbestos and tobacco smoke
biological carcinogens such as
infections by virus (Hepatitis B Virus and liver cancer, Human
Papilloma Virus (HPV) and cervical cancer) and bacteria (Helicobater
pylori and gastric cancer) and parasites (schistosomiasis and bladder
contamination of food by mycotoxins such as aflatoxins (products of
Aspergillus fungi) causing liver cancer.
Tobacco use is the single most important risk factor for cancer and
causes a large variety of cancer types such as lung, larynx,
oesophagus, stomach, bladder, oral cavity and others . Although there
are still some open questions, there is sufficient evidence that
dietary factors also play an important role in causing cancer. This
applies to obesity as a compound risk factor per se as well as to the
composition of the diet such as lack of fruit and vegetables and high
salt intake. Lack of physical activity has a distinct role as risk
factor for cancer. There is solid evidence about alcohol causing
several cancer types such as oesophagus, pharynx, larynx, liver,
breast, and other cancer types.
HOW DOES CANCER DEVELOP?
Cancer arises from one single cell. The transformation from a normal
cell into a tumour cell is a multistage process, typically a
progression from a pre-cancerous lesion to malignant tumours. The
development of cancer may be initiated by external agents and inherited
genetic factors. Ageing is another fundamental factor for the
development of cancer. The incidence of cancer rises dramatically with
age, most likely due to risk accumulation over the life course combined
with the tendency for cellular repair mechanisms to be less effective
as a person grows older.
HOW CAN THE BURDEN OF
CANCER BE REDUCED ?
The existing body of knowledge about the causes of cancer and about
interventions to prevent and manage cancer is extensive. Cancer control
is understood as public health actions which are aimed at translating
this knowledge into practice. It includes the systematic and equitable
implementation of evidence-based strategies for cancer prevention,
early detection of cancer and management of patients with cancer.
Up to one third of the cancer burden could be reduced by implementing
cancer preventing strategies which are aimed at reducing the exposure
to cancer risk mainly by:
changes in tobacco and alcohol use, and dietary and physical activity
immunization against HPV infection
the control of occupational hazards
reducing exposure to sunlight
Another third of the cancer burden could be cured if detected early and
Early detection of cancer is based on the observation that treatment is
more effective when cancer is detected earlier. The aim is to detect
the cancer when it is localized. There are two components of early
detection programmes for cancer:
Education to promote early diagnosis by recognizing early signs of
cancer such as: lumps, sores, persistent indigestion, persistent
coughing, and bleeding from the body's orifices; and the importance of
seeking prompt medical attention for these symptoms.
Screening is the identification by means of tests of people with early
cancer or pre-cancer before signs are detectable. Screening tests are
available for breast cancer (Mammography) and Cervical cancer (Cytology
Treatment of cancer is aimed at curing, prolonging life and improving
quality of life of patients with cancer. Some of the most common cancer
types such as breast cancer, cervical cancer and colorectal cancer have
a high cure rate when detected early and treated according to best
evidence. The principal methods of treatment are surgery, radiotherapy
and chemotherapy. Fundamental for adequate treatment is an accurate
diagnosis by means of investigations involving imaging technology
(ultrasound, endoscopy, radiography) and laboratory (pathology).
Relief from pain and other problems can be achieved in over 90% of all
cancer patients by means of palliative care. Effective strategies exist
for the provision of palliative care services for cancer patients and
their families, even in low resource settings.
WHO'S STRATEGY FOR
PREVENTION AND CONTROL OF CANCER
Following the adoption of a Cancer Prevention and Control Resolution at
the 58th WHA on May 2005, WHO is developing the Global WHO Cancer
Control Strategy. The Strategy aims at reducing the cancer burden and
cancer risk factors as well as improving the quality of life of
patients and their families worldwide by means of planning and
implementing cancer prevention and control strategies. The cancer
control strategy is integrated into the overall WHO chronic disease
prevention and control framework of the Department of Chronic Diseases
and Health Promotion. The cancer control strategy is based on the
following guiding principles:
People-centered: the ultimate goal is to improve the well-being of the
people, communities, families and individuals.
Equity: the strategy focuses on the needs of low-and middle-income
countries and of vulnerable and marginalized populations.
Ownership: the strategy guarantees the strong commitment and active
involvement of key stakeholders in each stage of the decision-making
process and implementation.
Partnership and multisectoral approach: the strategy ensures the wide
participation and collaboration of all sectors: public and private,
Sustainability: the strategy emphasizes the need for national
governments and partners collectively strive for financial and
technical self-reliance, to ensure the continuation of benefits from
established programmes after major assistance has been completed.
Integration: the strategy is embedded within the overall framework of
chronic disease prevention and control and other related areas (such as
environmental health, communicable diseases, etc).
Stepwise approach: the strategy considers the implementation of
interventions, at a national or sub-national level, in a sequential
Evidence-based: the strategy is based on research results, programme
evaluation, economic analysis, best practice, and lessons from
WHO, in cooperation with its cancer research agency, the International
Agency for Research in Cancer (IARC), and other organizations of the
United Nations system, will provide the leadership for international
cancer prevention and control and will develop the following actions:
Advocacy and political commitment for cancer prevention and control
Generation of new knowledge and dissemination and diffusion of existing
knowledge to facilitate the application and programme delivery of
evidence-based approaches to cancer control
Development of standards and tools for guiding effective cancer control
planning and implementation of evidence-interventions for prevention,
early detection, treatment and palliative care
Facilitating the development of multisectoral networks of cancer
control partners at the global, regional and national levels
Building capacity for developing and implementing effective policies
and programmes and strengthening health systems
Provision of technical assistance for the rapid, effective and
efficient translation of evidence-based cancer control interventions
into public health policies and programmes in developing countries.
World Health Organization
Global trends in cancer control can be significantly improved through
sustained strategies of primary prevention and early detection. Even
with today’s sophisticated communications technology, most people are
not aware that most cancers are preventable. In low-and middle-income
countries, 80% to 90% of cancer patients already suffer from advanced
and incurable cancers at the time of diagnosis. Screening, early
detection and lifestyle changes are critical to avoid this trend from
continuing. From a global perspective, there is strong justification
for focusing primary cancer education and prevention activities on four
main cancer-causing factors. These are: (1) avoid tobacco, (2) avoid
obesity/adopt healthy diets (3) learn the facts about viruses,
infections and new vaccinations (4) be smart in the sun.
Advocacy and health education are fundamental especially in driving
behavioural changes among young people where we can make a meaningful
difference in reducing the burden of preventable cancers. The key to
cancer control is prevention and the time to act is now.
Effects of Cancer
Cancer is a lonely journey. While advances in treatment have improved
the physical experience, people living with cancer continue to suffer
emotional pain and loss of self-esteem and self-confidence. These
individuals often see their benefits, rights and social status snatched
away overnight – a situation that often remains even after treatment.
event organized at Boston!
At the initiative and
invitation of Mrs. Michele Marinthe Vlahos, Mrs. Olga Cridland was
invited on the 1st of December 2006, in USA, in order to speak about
the Romanian children with cancer, about the Association P.A.V.E.L. and
about the need for help for these children.
Mrs. Vlahos visited this September the Association
P.A.V.E.L. and the oncology ward from the EMERGENCY CLINICAL HOSPITAL
FOR CHILDREN "Maria Sklodowska Curie (Budimex).
In this ward are treated per week about 40 children with different
forms of cancer.
Mrs. Vlahos was very touched by what she saw or
spoke when she met the children, the parents, the nurses and the chief
doctor and we appreciate very much her involvement in trying to help
This hospital is one of the three hospitals from
Bucharest, where there are oncological or hematological pediatrics
wards, other two being: ONCOLOGIC INSTITUTE « Prof. Dr.
Alexandru Trestioreanu », where at the Pediatrics ward are
treated weekly about 50 children /week and CLINICAL INSTITUTE FUNDENI,
Hematology Pediatrics wards, I and II, where weekly are treated about
140 children /week. These children are from a large area of Romania.
Few years ago, learning from Mrs. Valeria Ivan about
Association P.A.V.E.L. and the need of help for the children with
cancer, Mrs. Vlahos answered straight away, collecting an amount of
money, with the help of the members of Richelieu Club and French
Orchestra from Boston – money which were sent to our organization as
support for our activities for the ill children.
This year, with the kind help of Mrs. Michele
Marinthe Vlahos, of the Richelieu Club Alain Briottet and all the
Richelieu Clubs of New England, under the patronage of Professor Radu
Florescu and with the kind help of the Romanian members of the Orthodox
parishes, from Boston and its surroundings (one of the parishes
involved, more, being "St. Cuv. Parascheva", Wakefield), it was
organized a fundraising event at the HELLENIC COLLEGE, Brookline (near
Boston), on the 1st of December 2006, were Mrs. Cridland
made her presentation.
The purpose of this fundraising was
to raise $10,000 in order to buy a second hand minivan to be used as an
ambulance for transporting children from hospitals to the P.A.V.E.L.
House or their homes and helping to return the deceased children to
At this event was raised $3,000 and we decided to
continue to raise money, further on.
We would like to thank to all people involved in the
event and special to Mrs. Michele Vlahos, for the sensitiviness,
understanding and kindness shown towards the ill children and proved
with this occasion!
God bless them all!
Participation at the Cancer United
Brussels, 19th of October 2006
" Dear Olga-Rodica Cridland
Thank you very much for signing the Cancer United Call for
Action. With your support we are hoping to improve the access to the
best cancer care for all cancer patients across Europe.
Your name and country will appear among the list of signatories
available on our website.
I would also like to remind you that you can find further
information about the issues raised in the Call for Action on the
Please feel free to contact me should you have any question
about the Cancer United campaign and the Call for Action.
Prof. John Smyth, Cancer United Chair, and Ingrid Kössler,
Cancer United Co-Chair
25 Oct 2006"
1 August 2006
· Equal access to quality cancer care
for all patients across Europe.
· To have comprehenive national cancer plans in all
countries of the European Union through a Call for Action to the
European Commission to develop a Europe-wide cancer strategy.
· To gather one million
signatories to support our Call for
Action – available at: www.cancerunited.org
· To ensure that cancer care reflects the impact of
cancer on a person’s life.
· The Cancer United
Campaign will be launched in Brussels on 19 October 2006
followed by national activities in every Member State of the
European Union over the next 18 months.
· The Cancer United Campaign
will undertake a fact-finding mission
alongs de the national activities.
· The Cancer United campaign will return to
Brussels in Spring 2008 to present its findings and the
Call for Action to the three main EU
institutions: the European Parliament, European
Commission and European Council of Ministers.
More about the
Cancer United Campaign:
· The Cancer United Campaign
is being driven by a coalition
of patients, patient groups, doctors, nurses,
researchers, industry, policy makers and major institutions
involved in cancer research and care.
· The campaign will be
to each member state of the
EU and will be led by a
National President in each country.
· The Cancer United Campaign is managed by an
- Prof. John Smyth, Professor of Medical Oncology at Edinb urgh
University and President of the Federation of European Cancer
Societies is the Chair of the Executive Board.
- Ingrid Kössler, President of
the Swedish Breast Cancer Association
is the Co-Chair of the Executive Board.
· Other Executive Board
Members of the Cancer United Coalition are:
- Dr Matt Aapro, Dean of the Multidisciplinary Oncology
Institute, Genolier and Executive Director of the Internat onal Society
for Geriatric Oncology (SIOG)
- Prof Franco Cavall , Director, Oncology Institute of Southern
- Prof Alexander Eggermont, Immediate Past-President, European
Organisation for Research and Treatment of Cancer (EORTC)
- Tom Hudson, President, Europa Uomo
- Catherine Steele, International Head Public Policy, Pharma
- Prof M ke Stevens, CLIC Professor of Paediatric Oncology,
University of Bristol, UK
- Prof Thomas Tursz, Organisation of European Cancer Institutes
- Anita Waldmann, President, Myeloma Euronet
- Dr Yvonne Wengstrom, President, European Oncology Nursing
· The Cancer United Campaign is supported by a
grant from Roche.
Why do we need the
Cancer United Campaign?
· Cancer touches every family
in Europe. It is the second
main cause of death after cardiovascular disease
· Around 1.7 million people
die from cancer in Europe each
year – every two minutes another six
families will have
lost someone to cancer
· Although major advances have
been made in cancer treatment,
around a half of cancer patients still die of
· In men, the most commonly
diagnosed cancer is lung cancer
(19%); in women, the most commonly diagnosed
cancer is breast cancer (27%)
· Access to quality cancer care varies from country to
country: if, for example, you live in Spain you are much
more likely to have access to the newest therapies than if you
live in the UK
· In the EU25, the probabilities of surviving lung cancer
5 years after diagnosis are almost twice as high in the country
with the best survival rate than in the country with the
International Childhood Cancer Day -
this occasion, the Association
P.A.V.E.L.organized two events:
Saturday, the 18th of February 2006, at 16 o' clock, the Theater "Ion
Creanga", from Bucharest together with the Association
a free theater performance
"The Witch Meg' s Adventures" by David Wood,
after Helen Nicoll and Jan Pienkowski.
Claudia Revnic, Florina Luican, Ovidia-Manon
Gabriel Coveseanu, Voicu Hetel
Cornelia Pavlovici, Voicu Hetel, Marioara Sterian,
Artistic direction: Elliott
Swift si Cornel Todea
For immediate release: January 2006
What: International Childhood Cancer Day
Where: 65 countries around the world
When: 15th February 2006
Why: To raise awareness of children with cancer worldwide
die needlessly every day from cancer
Official statistics (IARC) estimate that 80% of children are diagnosed
with cancer live in developing countries where the childhood cancer is
often either not diagnosed or not treated appropriately. More than half
of the children that do get diagnosed in developing countries will die
of their disease.
Childhood cancer is highly treatable with early diagnosis and access to
the best treatment. Some 75% now survive in developing countries.
However, later diagnosis reduces to chances of recovery, and with no
specialist treatment, the child will die.
ICCCPO estimates that up to 100,000 children die needlessly from cancer
each year because they lack access to optimal treatment – that is 250
children every day, more than 10 every hour.
In 2006, ICCCPO is campaigning with SIOP and UICC to raise awareness of
the need for early diagnosis of childhood cancer and access to a
specialist child cancer unit for treatment, including palliative care.
In developing countries it will bring hope to tens of thousands of
children currently not properly treated. The earlier a child is
diagnosed, the better the chance of successful treatment and recovery.
ICCCPO and SIOP have endorsed the “Signs of Cancer” poster for use in
basic education for families, schools and local doctors.
For media information contact Anita Kleinesberger or Geoff Thaxter:
ICCCPO is the
International Confederation of Childhood Cancer Parent Organisations,
representing families of children with cancer worldwide. www.icccpo.org
SIOP is the
International Society of Paediatric Oncology, representing the
international medical profession in childhood cancer. www.siop.nl
UICC is the
International Union Against Cancer, representing the global control of
IARC is the
International Agency for Research on Cancer. www.iarc.fr
Notes on childhood cancer:
Data on childhood cancer occurrence is largely
unavailable. Based on the information available it is estimated (by
IARC) that 160,000 new childhood cancers and 90,000 deaths occur each
Cancer affects around 100-150 children per million each year. Extending
this rate to the world population of children would suggest there may
be 225,000 cases per year.
ICCCPO estimates that based on incidence rate of childhood cancer and
the number of children in the world, there are about 225,000 actual
cases. ICCCPO also estimates that up to 100,000 of these children die
needlessly because they lack access to optimal treatment available in
75% of children with cancer survive at least 5 years when given access
to optimal treatment.
“Signs of Cancer” details are available from the ICCCPO website.
Childhood Cancer Day is 15th February.
Cancer Day is 4th February.
Because UICC have focused on childhood cancer in 2006, ICCCPO and SIOP
are campaigning in 2006 between 4th and 15th February.
Beginning with 2003,
the day of 15th February will be
the International Childhood
this occasion may be run for up to a month around this date.
purpose of the
International Childhood Cancer Day is to:
- help educate
public about childhood
- support local
fund-raising by members
of ICCCPO (the International Confederation of Childhood Cancer Parent
international sponsorship of
In 2002, the
Childhood Cancer International Day was celebrated at the National
Operetta Theater, from
as extraordinary guest, Baroness Emma Nicholson (15 January 2002).
with this occasion from Her
Majesty Queen Elisabeth II,
The Queen of the United Kingdom, from Her Majesty
The Queen of The Kingdom of The Netherlands and
from His Royal Highness
Prince of Wales.
Zilei, 12-13th January 2002
in ajutorul copiilor bolnavi
Parintii copiilor bolnavi de cancer, reuniti in "Asociatia P.A.V.E.L."
si artistii lirici de la Opereta au initiat un proiect in scop
Astazi, ora 11.00, la Teatrul National de Opereta are loc un spectacol
in beneficiul acestor copii. In prezenta baroanei Emma Nicholson, cei
cunoscuti solisti ai Teatrului de Opereta, printre care Daniela
Eugenia Ilinca, Florin Georgescu etc vor interpreta arii si duete
din operete. In foaier vor fi expuse desene realizate de copiii
Pentru ca acest spectacol sa-si atinga scopul - acela de binefacere -
unui bilet a fost stabilit la 200.000 de lei. (C.D.)
Baroness Emma Nicholson
visiting the Association P.A.V.E.L.
Libera, 11th January 2002
de binefacere pentru copiii bolnavi de cancer
Sambata, la ora 11, la Teatrul National de Opereta "Ion Dacian",
P.A.V.E.L. impreuna cu institutia de cultura organizeaza un spectacol
binefacere cu ocazia Zilei Internationale a Copilului cu Cancer, care
avea loc pe data de 15 ianuarie 2002. "Farmecul Operetei" se va bucura
de participarea unor prim-solisti, printre care Doina Scripcaru, Silvia
Sohterus, Mioara Manea-Arvunescu, Gabriela Daha, Stefan Popov, Daniel
etc. Danseaza Monica Strat si Iulian Radoi si acompaniaza orchestra
sub conducerea violonistului Eugen Mirescu. Spectacolul se va bucura de
prezenta baronesei Emma Nicholson, a unor numerosi oameni de afaceri,
ai corpului diplomatic, ai Guvernului etc. Toate fondurile vor fi
Asociatiei P.A.V.E.L., care este o organizatie umanitara, non profit si
neguvernamentala a parintilor cu copii bolnavi de cancer, leucemie si
grave. Scopul ei este de a oferi ajutor moral, material si legal
cu copii bolnavi. Pretul biletului la spectacolul de maine este de
lei. In Romania, rata de vindecare a acestor copii bolnavi este de 20
in functie de specificul bolii. (Ioana Georgescu)
up of the campaign "Pretuieste viata"
According to the "Accord of Co-operation"
"Aditional Act" (09.03.2005) between the PRIME TIME WORLD BROADCAST S.A.
company (the producer of "Surprize, surprize" show
takes place on the Romanian television
channel, TVR1) and the Association P.A.V.E.L., all the money, collected in
the fund - raising (the Campaign "Pretuieste
done for the developping of the Romanian medical
system in order to realise the bone marrow transplant for the cancer
patients - were transfered
on the 06.04.2005, from the special
(campaign) accounts of the Association P.A.V.E.L. (opened for this
occasion) into the accounts
of the three bone marrow transplant
units from Romania, from Bucharest, Timisoara and Targu Mures.
Part of these money were
collected directly in the
accounts through donations
from individuals and companies and others
were collected by calling
the numbers: 090 090 0001 (100,000 lei/call)
and 090 090 0002 (200,000 lei/call), by the national
telephone company ROMTELECOM.
There were registered 12,278 calls of
30,999 calls of 100,000 lei , and from these money, ROMTELECOM
transfered in our accounts the amount of 3,951,100,711 lei (meaning 71
On the 01.04.2005, into the Association P.A.V.E.L.
campaign - account were totally 6,295,402,913
lei (including the interest, too).
On the 02.03.2005, between
the Association P.A.V.E.L. and the three
transplant units from Bucharest, Timisoara and Targu Mures were signed
Contracts, where it was mentioned that each unit will recieve 2,098,242,638 lei (which was
done on 06.04.2005).
These units are: Clinica
III - Compartimentul de Transplant Medular
al Spitalului Clinic de Urgenta pentru Copii „Louis Turcanu”,
Timisoara, Departamentul de
Medular al Institutului Clinic Fundeni, Bucuresti si Clinica de Hematologie si Transplant
Spitalului Clinic Judetean de Urgenta, Targu
to all those who will benefit of a transplant of bone marrow, we thank
from our heart to all the individuals, companies - who
donated for this
campaign, and to all volunteers
and the organisers of the campaign!
situation of these units and of the people who need a transplant of
bone marrow is still very difficult, we pray you to continue to support
them, donating into the accounts
of the Association P.A.V.E.L. and of other similar organisations, which
fight for people with cancer!
Help also the children ill of cancer
and leukemia who are under treatment in hospitals and need desperatly
The Association P.A.V.E.L. has participated in a new
fund-raising event in co-operation with the "Surprize, surprize" show
company and with the extraordinary contribution of Mrs. Andreea Marin,
which took place on the Romanian television
channel, TVR1, on the 11th of September with.
You may look at the site: http://www.surprize-surprize.ro/
The fund - raising is
done for the developping of the Romanian medical
system, in order to realise the bone marrow transplant, for the cancer
We'd like to thank you all who will donate (see our "how
can you help" page).
Olga Cridland and her son,
Cosmin Halmagi, 11 September 2004
donation within our
project in colaboration with
"Surprize surprize" show, please use the following accounts,
open at the bank BANC
POST S.A., branch
sector 3, Bucharest, Romania:
EURO: RO91 BPOS 7100 3031 332E
RO65 BPOS 7100 3031 332U
RO54 BPOS 7100 3031 332R OL02